Perititoneal Mets refused HIPEC - What now.
Had Hartman’s procedure April 2018, Dukes Stage C, T4, with one lymph gland affected. In February 2020 following ct scan diagnosed with peritoneal mets. The surgeon stated that, although confined to omentum, in his opinion seeding too pronounced to make me a suitable candidate for surgery. I asked whether it would make a difference if I made a good response to chemo. He said that he would refer me to Basingstoke, but not optimistic.
4 cycles of chemo, Folfiri followed and a scan showed stable. I was tested for Cetuximab, but ruled out as KRAS mutation. I am on a chemo break and a further scan will follow in September. I have a feeling that it will show progression, as although previously without symptoms, I now have abdominal discomfort lower right quadrant.
Having heard nothing about CRS and HIPEC wrote to Surgeon with a copy to Oncologist. The Oncologist rang to say that Basingstoke said that they could not offer me anything. I asked whether this was medical or Covo related, and he said probably the latter.
Although I felt that HIPEC was a remote possibility, that has now been taken off the table, and I am left with a condition deemed incureable, with the negative factor of a KRAS mutation, and a prognosis of a year’s survival.
In the meantime, I am still keeping active and have no difficulty walking 5 miles or more.
I do feel that I have no control over my situation, and my way of coping is a day at a time.
Can anyone offer me any crumbs of comfort.
