It looks like I’ve penile cancer following a recurrence of Paget’s Extra mammary condition and a penile Walt. So far, one circumcision, one wart removed and urethra remodelled, then glans resurfaced with a skin graft. Latest procedure stopped by surgeon,biopsy, CT and ultrasound tests. Hope to know more in next ten days.
Hi Dialler and welcome to the online community
I'm sorry to read that you think you have penile cancer and are currently having tests and biopsies. I'm tagging jl__79 into my reply to you as he has also recently joined this group and might be able to share his experiences with you.
Do come back and let the group know when you've had your results and I'll be keeping my fingers crossed that it's not cancer
Sorry to hear that Dialler. I'm sure the other members of this group will be happy to share their experiences with you if you wanted to ask any questions about your treatment.
Well it took much longer than I expected. Two weeks in hospital with the drains. Then we llowed home with one drain hi he spectacularly blew out t home. Back to hospital to have new drain fitted under local anaesthetic which went very well and lots gunk came out. Just had it removed after week. Still some stuff but I can now touch my toes without restraint. About to be handed over to oncology and good bye to surgery. Surgery is a failure waiting a medicalise treatment in the meantime only treatment.
Just finished 25 radiotherapy treatments,getting a pacemaker on the way and Covid. Quite a journey. Lymph oedema has occurred and the local lymphoedem specialist nurse has visited and suggested some exercises. Hope they bring some alleviation, aspect of removing lymph nodes which I didn’t properly understand