Hello I am new here

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I have inoperable pancreatic cancer and await to see the oncologist and chemotherapy. 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community and my husband's cancer is currently inoperable. He had 12 weeks of FOLFIRINOX in the hope that the tumour would shrink away from the blood vessel it was very close to but unfortunately that didn't happen. However, the tumour didn't get any bigger during that time so we're taking that as a positive. He's currently taking a break from treatment but is likely to restart chemo in May.

    When do you have your appointment with your oncologist?

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thanks latchbrook for your welcome. 12 weeks of chemo is quite a journey but you have some positive outcome.

  • Sorry, my initial reply was slightly wrong in that although chemo lasted 12 weeks it was every 2 weeks.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thanks for the clarification . I wait for an oncologist appointment expecting to be called within a week from now.

    The biopsy has identified the cancer and a chemo drug which might help. I think I will probably try chemo and I know my family will support my choice , but I think they want me to try. 

    I feel I am not brave, nor am I fighting cancer, I am preparing for death whilst living life to the full. I have the opportunity to see family and friends to enjoy hugs and tears. The future worries me but I am supported and the NHS will do what it can to make my journey comfortable and may even give me a chance to live and love a little longer.

  • I think you'll find that no one who has cancer considers themselves 'brave' or 'fighting' cancer. They're expressions that most of us hate, along with "you must stay positive"....aagh.

    People who use these terms think they are saying the right things to us but they're not. In fact it has a name and is called 'toxic positivity'. Macmillan have done a couple of blogs about it and clicking here will take you to the first one if you want to read it.

    Like you, my husband has sorted things out but we're currently making the most of the good weather and his break in treatment to have trips away.

    Anne

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"