Hi I'm Amy, 6 weeks ago my partner of 25yrs was diagnosed with Stage 4 Pancreatic cancer which is also in his liver. It was a shock as he was first told it was kidney stones, then appendicitis, then eventually Cancer in a short time frame.
He started Gem-Cap chemo 1st June tablets & awaiting to have the infusion weekly after he has a portacaph fitted. He was in a hospice to manage his pain & get correct pain medication for 2 months & now gone to live with his Mother, bigger house more room, It's hard for us all to deal with.
We have been advised to spend time doing what he wants when he's feeling up to it. He wants to stay over at mine one weekend but his Mother is saying he can't take the chemo meds out her house, is this correct? I have been to all his appointments with him & aware of all the side effects taking temperature, the red card number etc & speak to the Macmillan nurses & I will be checking with them & his treatment team, if this is correct about his chemo medication not being able to move from address it was precsribed. I just wondered if anyone had a similar experience or advice?
This is so hard to navigate for us all, seeing him in pain & my emotions are all over the place & it's like I'm on autopilot.
Sorry for the long message I didn't know where else to turn. X
