Choosing not to have treatment for incurable cancer

Hiya Kylie, 

I too am in a similar situation.....December 22 they also knew something mysterious was on my pancreas, but also on my lung something  was going on ....they concentrated on the lung and removed the mour ( not a nice operation) but now in hindsight glad I did it . Long story short it was all connected.....However,  2 endoscopys later  , a week ago today I  was told ...nope  stage  4 .....this w the case back in February when I had the operation, the pathology reported reported it ......some one some where has cocked up !!! There was only me chasing things ....so they have offered me aggreive chemo....I don't want to  know how long  I  have left   ...I'm taking  the chemo ( if my body can stand  it ) if I can stay another six months with my family and grandchildren...I'm grabbing it ...but that's my choice.....I've got the wig sorted..keep  taking her for a walk on my head ......my grandchildren  are all small 2...2...4..and six .....and I don't want them seeing grandma with noair.....pancreas was dormant for 7 months......no change...since endoscopys its growing  

I’m so sorry to hear this. All I can say is my hubby was told he had nine months without chemo. He’s been having gemcetabine since diagnosis in February, and unless the scan tells us otherwise - results this Thursday we will plod on. Positivity is the key, very hard, but keep on fighting ️xxx Time something was done more to sort this horrendous disease. 

Hi there.  Appreciate you responding.  Bless you.  Know what you're going through.  It's such a hard decision to make whether one takes chemo or not.   In my situation I weighed up all pros and cons and decided to opt out.  Like yourself,  I've been let down many times by "the system " . Within a week I was told that cancer hadn't spread to it had spread. Along with many other blips and me doing my own research helped me come to my decision.  Like yourself,  I have 5 grandchildren.  Luckily they're older (teenagers). They're taking it in their stride and are really supportive.  They know I'm poorly and I'm not going to get better so we just adapt on a daily basis.  I just soak up all their hugs, cuddles which, for me, is the best medicine in the world,  and no side effects . Thinking about you.  Stay strong and positive xxx

• Hi. Thanks for your response.  Sorry to hear that your family are going this pile of pants as well.  So relieved to know (in the nicest way) that I'm not on my own with the positive attitude.   Someays it's harder than others but I feel I'm in control of me not the "system ".  I keep a daily positive diary  - I write every little positive I've achieved in a day. Stupid things like - got up, getdressed, put clean clothes on, put some lipstick on (I know your husband can't do that ) . Phoned friends etc.  Also much more positive things re making magical  new memories happen. Recently I hired out a narrow boat for the day that accomodated all our family (big boat!!!) . Had briliant time,  got tired but wouldn't have been able to do that if on medication.  Also,  along with 20 others (family and close friends) we managed to book a weekend break on a caravan site on the east coast.  Everyone was aware of the situation,  we just adapted.  We laughed together, cried together, reminised together.  Beautiful ️.  The main thing that affects me most is the bloody fatigue that comes along with this particular "it" . However,  we got over that on holiday  - they hired out a "Madgemobile - from benidorm!" So I could walk the prom with them all! I was lethal on it.  Many people went home that day with sore and bruised ankles.  That's all for now. Need a rest!!+  stay positive and thanks again for responding. 

It's so bloody hard to accept at the minute......when I thought the lung was the main concern...