My dad is 73 has always been very active, fit and healthy. Up until 6 weeks ago he would go out walking/hiking roughy 6-10 miles twice a week as well as going to the gym. He then started to have pain in his stomach and could not tolerate food, losing over 2 stone in a matter of weeks.
Both he and my mum were pushing his doctors for tests to help identify the problem. He was sent for a blood test which indicated an infection and was put on antibiotics he was also sent for a scan around 20 days ago, the result of which we have still not officially been provided with, despite chasing (we have since found out these came back on 09.08.23 and showed PC).
Dad collapsed on Monday and was taken to hospital, where he remains. My mum didn’t originally tell me as I had my own medical appointment on Tuesday and so I saw him for the first time yesterday. He looks like a shell of his former self, he has lost so much weight, looks very frail (he appears to have aged about 20 years), he can barely stay awake or talk, his stomach is bloated and his eyes appear jaundice.
He has been told he has pancreatic cancer that has spread to the liver and lymph nodes. neither him or my mum have spoken to a doctor, despite requesting to do so. The ward sister advised of the suspected diagnosis and that next step is a biopsy to determine if chemotherapy is an option. However, there is no timeframe of when the biopsy might take place. Worse of all we are told the hospital only do biopsies once a week (Thursdays) but they don’t know if my dad will be taken today or not. We are massively concerned that his cancer already seems to be advanced any any delay in decisions around treatment plans could mean options are off the table and his life expectancy reduced further.
This is a massive shock to my mum, my brothers and me. I am at a complete loss and would welcome any advise as to how we can try to speak to his hospital doctor and push forward his tests/biopsy.
Thank you for taking the time to read this and I wish everyone on here strength to fight this terrible battle.
Hi JasmineSuzanne and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read that your dad has recently been diagnosed with pancreatic cancer which has spread to his liver and it's perfectly normal to feel as you do.
Although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' your post back to the top of the discussion list again.
Since you posted this has your dad had his biopsy? If not has he been allocated a cancer nurse specialist (CNS) as they can usually help with providing information about what is happening? If he hasn't been allocated a CNS yet then you could phone and speak, with your dad's permission, to his consultant's secretary who should either be able to give you the contact details of the CNS or find out from his consultant what the plans are.
Hi
I am sorry you are going through this My husband was diagnosed in a similar way back in early May he also has pancreatic cancer and liver mets and is now also diabetic, they way they told him and your Parents is really not right and they should have a Dr or specialist nurse you can speak to. I complained to the PAtient liaison service PALs and they helped to get us the right people to speak to. It also doesn’t seem unusual to wait for a biopsy we had to wait a week and then a further two weeks for results, it really is difficult and so worrying I completely understand how you feel. Unfortunately this cancer is so silent and it is often very advanced when they find it. My husband is now having palliative chemo and just completed his 5th cycle and is coping well, once they get a treatment plan it seems to go more smoothly but the waiting is awful I know. Take care And if there is anything else you would like to ask I am more than happy to help.
Hi Latchbrook, thank you for your message.
We were told yesterday the biopsy would be on Tuesday. It was also only yesterday after we pushed again that a referral was made for a palliative nurse. We were also told a referral would be made to a dietitian, but it does not appear this has yet been done.
My dad has now stoped eating completely, previously he’d have a couple of bites of food a day. He is increasing tired and confused. From my research online it appear we may be approaching his final days, although no one has told us this.
Hi Plum1972
Thank you so much for your reply and so sorry to hear about your husband’s diagnosis. We have been given the details of PALs and will be writing to them.
As I have just replied to Latchbrook we were told yesterday the biopsy would be on Tuesday. It was also only yesterday after we pushed again that a referral was made for a palliative nurse. We were also told a referral would be made to a dietitian, but it does not appear this has yet been done.
My dad has now stoped eating completely, previously he’d have a couple of bites of food a day. He is increasingly tired and confused. From my research online it appear we may be approaching his final days, although no one has told us this.
It really doesn’t sound like you are getting much medical support - my husband is only 53 and apart from showing signs of type 1 diabetes which is why he was admitted he wasn’t actually aick - your Dad does seem very poorly, not sure if you have already tried but you can call the macmillan nurses in this site for advice not sure if they could help or tell you if there is a centre near you that you may be able to go and speak to someone if the hospital aren’t helping much, we live in They also gave my husband a liver ultrasound and CT scan whilst he was in hospital which confirmed tumours so we already knew really before biopsy. Not sure any of this helps, I hope he improves and you get someone to help you through this.
I am going through a very difficult time because my younger sister, now 51 years old, was also diagnosed with this disease. The problem is that I'm feeling helpless because she lived in London alone, her daughter came from Brazil to take care of her, but I know she won't be able to support herself. I don't know what to do, because I live far away from her,
Hi JasmineSuzanne
So very sorry to hear of your dad it is very upsetting for you and your family. I would advise you to contact Pancreatic Cancer UK and look on their website its very informative. You can speak to Specialist Pancreatic Nurses who will be able to understand your concerns. Hope this helps. XXX
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