Husband with pancreatic cancer

Hi Gina Girl, 

I read your story and it resonated with me so much..,,

my husband also has PC and just had our first scan after 5 rounds of chemo. 
has your husband started Creon? That seemed to make a big difference to my husband. 
planning anything is near on impossible isn’t it, he might start by having a good day but with 30 minutes that can change. 
Could you plan maybe a holiday similar to centre parts where it’s a change of senary for you both in between his chemo. 
my husband is on FLorfolinox  too, The main things for my husband is keeping warm and not eating or drinking cold things. 
I would stay away from the internet and information as it’s so depressing, I found my MH took a nose dive after going on it, now I stay away. i feel so alone too, my husband seems to have a lot of support through friends and family but I maybe have 2 friends and maybe 1 family member who does Not want to hear anything negative. 
I feel so alone and like you keep having dreams( bad ones)  to the point I keep grabbing my husband to try and rip out the cancer which has hurt him a couple of times( just the grabbing of the stomach). 
i just don’t  know where or what to do or who to turn too as I am so scared of losing him. 

Please try not to feel alone, we are all here to support one another where we can. 
There was also a post a few days ago on this type of chemo which may help you. 

please feel feel to message me if you would like a chat. 

chrissie 

There’s also amazing specialist support Mon-Fri from the pancreatic cancer uk nurses helpline. I’ve learned so much from them and they’ve been incredibly supportive and kind. 

I can definitely sympathise with the way you are feeling. My husband doesn’t like to talk about anything and then sometimes he can say really awful blunt things and Iam totally dumbfounded. He doesn’t want a sell by date as he calls it and I don’t blame him, but he can get really down. Then the next minute he talks about jobs he needs to do in the garden!  Our oncologist says he wants to control my husband’s pain so he can get back to doing the things he loves and that’s the best we can hope for, he hasn’t managed it yet.  I don’t think we will be booking a holiday anytime soon. 
You are not on your own and I found this site is really supportive always seems to be some kind soul who will answer your questions. 

I am in a similar place. Husband dx July 22. Inoperable with mets in liver. Now on Folfiox after other chemo failed. Round 4 tomorrow, scan after 6 to see if working. We did not ask timelines either as he will not discuss. Very difficult times, I sometimes think this will break me and neither of us will survive it. Meanwhile we just keep going, one day after the next, no other choice. I am also hoping to book a few days away but that is a minefield trying to get the timing right between chemo, blood transfusions etc. Keep all bookings flexible! 

Hi MadelineL 

This is a difficult time for you. The best way is to do as you say and take one day at a time. People do things differently. Some like a time line and others don't. It would be good if you got away for a few days.

Squeaky

Hey Gina Girl,

how are you both? Have you managed to book Jersey? 

hugs

Chrissir