Mum just finished 6 months of chemo for pancreatic cancer

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Hi I'm here because back in May my mum had been in hospital for 4 weeks when she was diagnosed with pancreatic cancer, she'd been having pains in her abdomen, while hubby and I had been on honeymoon and hadn't told us. When we came home I knew something wasn't right she was jaundiced. Her doctor sent her straight to hospital and investigations began. She had a stent put in to open a blockage in the bile duct and had several scans. Then we were brought in to be told the diagnosis. Hospitals were only allowing one of us in as a designated visitor. Now bearing in mind theres 4 of us 2 daughters 2 sons you can imagine how hard this was. Only two of us were allowed in to be told and we had to relay the information back to the other two. So 6 months on mum finished her chemo on 1st Dec and we are waiting on an appointment to go and see what next steps are! At 3 months she had a ct scan done which showed a reduction, we don't know how significant the reduction is yet but its positive news no matter how small, the best we were hoping for was it had stayed the same! As you can imagine it's hard to get too positive as a other 3 months of chemo has passed and were hoping its the same. She had a s an done 5th Dec so shouldn't be much longer to wait to find out. Mum is so strong, she's an inspirational lady at 73 she would like to continue with chemo if they'll let her. She has tolerated this first round really well, she hasn't lost her hair and has never been sick with it which helps with her positivity. Here's hoping for some positive news soon. Would welcome any comments from any of you with similar circumstances. Sometimes it's easier to talk to people who aren't family.

  • Hi Shazza7

    I have PC and also in my lymph node.  I've had 9 months of chemo on 3 different drugs as 1st two did not agree with me I have had alot of side effects including losing all my hair its growing back now.  I have been off chemo now for 4 months and have got some normality back.  I have had 3 scans since finishing my chemo and all showing "stable" which I am over the moon about.  The cancer in my pancreas is stable the one in my lymph node very tiny grown (doctors not worrying too much at this stage).  Initially I was told I couldnt have an operation or radiotheraphy but only chemotheraphy.  On my last chat with onconlogist we asked about me having radiotheraphy as my latest results were good, I was recently told that I could now have this.  I recently went for a CT scan in preparation for radiotheraphy, radiologists measure you up and put markers on your body tiny tattoos so they know where the beam will go, its all tailored made for your body.  Staying positive and strong throughout is the key thing to getting through it, even for family and friends no matter what, your mum does not want you feeling sorry for her you really do have to be strong thats what got me to where I am now - its not easy I dont pretend about that never thought I would be in this position with my health but I've learnt to be very strong and I am sure your mum is the same, I am 63 so your mum is doing really well.  When you have your appointments ask if your other family can listen in on their mobile phones they did with me due to covid restrictions etc.  

  • Thanks for the reply, the initial diagnosis was such a shock for us as a family. My daddy died ⁷ years ago and he had dementia we went to hell and back with him he suffered terribly as it was aggressive vascular dementia! Mum found it very hard as there were times when he didn't know her. In my opinion 2 of the worst diseases that someone could ever be diagnosed with and has really taken its toll on our family. We are very positive in front of mum because she is but obviously when I'm on my own with my husband I have my moments when it hits me. Being told that the chemo isn't a cure and it's giving her time is hard but she's got a great faith and believes in the power of prayer so we hope to have her round for a while yet! She really wants to be here for my daughters wedding which is in April 2024 and is determined to do so. 

  • Hi Shazza7,

    hubby was diagnosed 26Th September 2022 with PC at 47 years old. 
    Your mum sounds like she has been a great trooper with the chemo as my husband has suffered abit with side effects( stroke like symtoms) but he has soldiered threw and should be having his 6th session next week. 
    then we are due to have a review which I’m am dredging,  so a scan and then back to the consultant to see what they are going to do hoping forward. 
    Ca-19 cells have come down from 1900 to 109 which I’m hoping is a really good sign. 
    I really do hope your review goes well, and goss I’m hoping ours does too…. Im trying to only have positive vibes for 2023

    sending hugs

    Chrissie 

  • Christie I'm sorry to hear of your hubby's side effects, that's terrible he's suffered on top if what he is already going through. Hopefully we both get some positive news soon. How are you coping with it all. I feel helpless at times but all we can do is be there supporting them through it every step of the way. I have great support from my family I really hope you have some form of support for you because it's not easy. Take care both of you x

  • Hi Shazza7 your mum will be a your daughters wedding and she will be choosing her outfit soon - she will be looking forward to it..  Yes it is a shock when you are diagnosed with this you are numb and cant take it in, I know I was in another world and my family but somehow you find the strength to fight back you have to.  Sending good vibes x

  • You most definitely do find strength when you have to. We can't be anything else but positive when mum is! It's 4 weeks since she had her last ct done and I know it won't be long before the appointment comes in, I think that's why I've come on here to find a little support in somewhere other than my siblings and my hubby and kids I just think you need an outside perspective. Thank you for that

  • I totally agree, my friends have been great but I think I just struggle with the apts and working full time. 
    can’t help but feel I need to work part time and i can’t really be honest with my feelings as they just all want to be positive which I’m trying to be but I’m a realist and need to protect me and my kids if the worst happens. 

    work is stressful and just found out today one of my husbands all time hero’s Luca Vialli has  passed away from pc so I’m guessing when I get home he will not be in a great place,