Young but no one is taking my concerns seriously

I think vista health is pretty quick, so fair play if you go with them. Just might need a GP referral for the scan. 

Oh, that’s slightly reassuring that H. pylori came back positive, may be less likely that the pancreas is involved? And that’s what I was thinking - it would’ve wrecked havoc by now I think. 

My pain is mainly on the right, but ventures to the left at times. I’ll have a contrast CT abdomen, and that’ll hopefully give some definitive answers. I’ve had a fair few investigations the last month, so hopefully this is the last.

See my pain is mostly on the left, like under my very last rib, but then if I lie down I can feel it in my left shoulder. I’m worried sick with it all. 

good that you’ve already had some investigations. My GP said it’s stress and to go on holiday. Now I just go A+E instead. Just to try and be heard. Only test I’ve had is an ultrasound on my abdomen, ultrasound on my groin and a chest X-Ray. It’s all bog standard stuff really. 

poor service from my GP. My lethargic and dizziness is really upping the ante lately too, which is strange because last week I felt ok apart from the pain. Are you still losing weight? My stools have been much more consistent since avoiding too much fats. 

my H. Pylori has been cleared now so I can’t blame it on that anymore.

Hey Mike,

That pain pattern is strange, but doesn’t sound like it lines up with pancreas, so I guess that’s reassuring. 

Good to hear about the stools! Do you feel your heart racing when you stand up or with the dizziness??

Weights the same which is good. I stopped checking for a couple of weeks (stupidly assumed it would be really low no matter what I did) and my consultant checked it and it’s been the same the last 3 weeks, which I I was surprised about. 

Also surprisingly is my appetite hasn’t changed too much, I’m still wanting to eat and feeling hungry. 

I know, but when you look at images of the human anatomy the pancreas starts in the centre and flares to the left. So the fact the Dr’s are telling me it’s in the right side of the abdomen, leaves me with questions. 

it’s weird because they’re loose every now and again, but mostly when I eat really fatty foods. But they are big in size, so definitely some malabsorption going on. 

I’ve not checked in a week, my partner has taken them off me as I was weighing myself daily and she said it was messing with my mind too much as it would fluctuate daily. But last time I weighed myself I was still around 234 lbs. But now without me weighing myself I see myself looking at myself in the mirror everywhere comparing if I’ve changed. 

no, I thought I would feel my heart racing, or something. But I’m not sure whether it’s down to the malabsorption, like my body isn’t getting enough nutrients, I’ve asked for my iron, vit D and B12 to be checked next week. 

My appetite is strange, I’m not hungry, but I’m forcing myself to eat. Really weird feeling, I’m really anxious about having certain foods also, as it can mess with my digestive system and then as soon as my stools are loose, I lose my mind again. Horrific. The wait is awful, just need to have some answers. This has been going on for three months now. Middle of Jan I first presented at my GP and I was told it’s viral and go on a holiday. Ridiculous. 

Hmm, fair enough, sometimes nerve supply can cause referred pain. Ok it’s a good sign your weight has maintained. 

I can understand your frustration, but you are doing all the right things, and there’s really nothing else extra you can do. To me, it doesn’t sound like your issues are from the pancreas the way you’re describing them. But something definitely is up. Hoping these tests give you the answers!

Yeah I’ve read about different nerves causing pains etc, but this one feels different, it’s sometimes under my left bottom rib, then my shoulder blade, then right across my back. Really concerning. Had my consultation with vista health this morning, he’s really good the Dr I spoke to. Reassured me regarding my previous tests and results, so next step with them is if I have a positive FIT test then continue with NHS treatment and scans etc. if that’s negative then he will book me in for a MRCP scan. To properly rule out my pancreas. Apparently this is the best detailing image they can do, without the use of a EUS. 

He advised that they have lots of availability and it could even be done the following day! What makes you think it’s not my pancreas? How are your stools lately? I’ve not had a loose stool in over a week, which I’m taking as a positive, none floating or pale in colour. Just a light brown which is consistent as I’m eating practically the same thing each day. 

Yea, some organs can have referred pain to the shoulder blade. I know the Pancreas and liver can have referred pain to the shoulder and mid back. 

Oh that’s good that they’ll do that. Hopefully you get your FIT test results soon and it’s negative. I think the symptoms would be more progressive, but who knows, better be safe than sorry. Mine have remained the same, still light brown, sometimes float sometimes not. It’s good that yours aren’t floating, it means that the body probably is absorbing fats at least.

Just had my CT scan with contrast done. They said the results would take a week, but let’s see. 

Yeah, I believe so, I’m not sure mines nerves though, just a dull ache feeling which comes and goes but seems to be worse when I’m leaning back. 

good to hear about the stool situation, mines been alright for the past week which has helped with my anxiety. Ordered a Selph fecal elastayse test and a calprotectin test. So going to have a look at them privately. Noticed the past few days my arms are really hot, like an itch sensation but no actual itching, it’s been hot recently and I’ve been in the sun. So putting it down to sunburn. 

how was your CT scan? Can’t believe how fast that was. I’m so frightened of mine, think that will be me finding out the inevitable. Has to be done I suppose, especially if I’m wanting to get better. Sick of how lethargic and dizzy I am daily. 

Covering all bases nice! CT scan was fine, I had the contrast which felt weird, but it’s all done. Let’s wait and see.

Do you think you might have chronic fatigue syndrome? I know that comes with lethargy, dizziness and sometimes high heart rate when standing etc. 

Well I’m hoping for the best result possible for you, and you have some answers soon enough. I know I’m ready for answers. No matter how bad/good they are. Been unwell for far too long now, Dr’s don’t care and A+E don’t care as my bloods are fine. 

I don’t think so? It’s strange, like all my blood drops from the back of my head, even when I’m lay down. Like tonight lying on my back, the top of my back is sore like something is pressing on the back of my ribs, I then get a shot of like hot flush, then a drop in blood from my head and I have to take 5/10 mins before even considering moving. My heart rate is ok usually, but I do suffer from high blood pressure which the GP wants to sort out when I’m back fit. Beginning to think if I will ever get back fit. I know there’s bad news coming after my scan, I’m 90% sure of it. Literally nothing else explains my symptoms. Had nearly every blood test under the sun, all normal. So not like I’m even deficient in anything. 

keep me posted with your results, I have everything crossed for you. I should have the results of my FIT test tomorrow, I don’t think it’ll be positive, never seen traces of blood apart from on the tissue that time. So I think it’ll be negative.