some days are just so hard

Hi, just to say I’m in exactly in the same situation as you with my partner. He is suffering exactly the same symptoms and has also had his dosage reduced.  It is so difficult seeing a man who was healthy reduced to skin and bones and so frail.  I know when he’s irritable that he doesn’t mean it , then I too feel cross then guilty.  I think you live every day with sadness and tears very close to the surface and yes it’s very lonely.   He also minimises what he tells family and friends so I try not to burden them too much.  I think we are on a path where we can only do our best.   Please don’t forget to look after yourself 

Thankyou for sharing and understanding . Knowing that you are going through a similar experience makes me want to offer you support too. Its so tough sometimes trying to be strong but then having sleepless nights just feeling overwhelmed by everything.I try to live in the moment but its difficult escaping the fear of the future.Most of all I do hope you also find time to take care of you too.