some days are just so hard

Hi, just to say I’m in exactly in the same situation as you with my partner. He is suffering exactly the same symptoms and has also had his dosage reduced.  It is so difficult seeing a man who was healthy reduced to skin and bones and so frail.  I know when he’s irritable that he doesn’t mean it , then I too feel cross then guilty.  I think you live every day with sadness and tears very close to the surface and yes it’s very lonely.   He also minimises what he tells family and friends so I try not to burden them too much.  I think we are on a path where we can only do our best.   Please don’t forget to look after yourself 

Thankyou for sharing and understanding . Knowing that you are going through a similar experience makes me want to offer you support too. Its so tough sometimes trying to be strong but then having sleepless nights just feeling overwhelmed by everything.I try to live in the moment but its difficult escaping the fear of the future.Most of all I do hope you also find time to take care of you too.

Hi, it's hard when they no longer seem like the person you know. We went through it as a family.

I now try to help those in the same position as me

Thank you for replying to our messages,  it is appreciated 

Hi we are in the same position but have finished chemo and now ready to have the 3 month scan

have to say am worried this time as partner has had a tummy pain

its so hard just watching them disappear in front of you and nothing you can do

We are going through the same my husband had whipple 7 weeks ago but dosent want chemo he is 78 and gets angry and frustrated I am there for him but feel very fightend of the future and cant sleep and cty most days by my self

Hi,  it seems that a few of us here on this thread are experiencing a similar situation  It is extremely hard to look after your partner, and very distressing at times.  It's like being in a nightmare where you just want to wake up and be normal again.  

I too am very frightened for the future but I'm putting one foot forward as best as I can.  I'm trying hard to find things in the day that lift my spirits a bit, although I feel guilty when something does.

I was unwell a few days ago in hospital overnight , I had a complete meltdown worrying he was on his own.  Luckily, my family rallied around, they took me to hospital and brought me home.   I know only you can understand how miserable the situation is, but do you have any family or friends to talk to.  Please take care of yourself as you are important too

Thank you for staying on this thread, it is one of the hardest thing I have ever experienced.  It's comforting in a way to know we are not alone.  

Thank u have family but live in England we r in Northern Ireland they r here as often as allows them to to be and in emergency’s and speak every day but I am so frightened of the future not sleeping and body and legs ache so much through stress thank u for responding to my message best wishes to you thanks again

 Ive been feelng pretty low latley but tonight I cried not with self pity but becuase I didnt feel so alone. Trust me I have cried with self pity and I feel I can be truthfull about that here.It sounds selfish but reading others experiences makes you feel your part of a bigger picture and honestly there is comfort in that. My husband hasnt been coping with Abraxane chemotherapy in fact its been dreadful so we had a short   break and what a mental relief that was. He decided to stop treatment  but after talking to the oncologist who said his blood CA19  had lowered he decided  continue but on an even lower dose. I support my husband in whatever his choice but internally I just wanted to curl up. It feels like we are fighting a battle to halt the cancers progress but missing out on life, I dont know the answers to the bigger queestions but it feels like riding a surfers wave, sometimes my stomach feels almost sick with the pressure so I understand the anxiety that you are feeling