I had pancreas preserving whipple surgery in 2018 but now need my whole stomach removing as it is completely carpeted with a mixture of high and low grade dysplasia tubular villous adenoma polyps (I have FAP and have already had duodectomy, gallbladder removal and panprotocolectomy).
I've been googling and can't find reference or a diagram of anybody having their duodenum removed and whole stomach too.
Plan is to attach part of illeum (small bowel) from beneath where jejunum currently is to my esophagus and then jejunum will be sealed off and just branching off (I have small adenoma polyps in jejunum which will never be able to be scoped after this surgery is carried out). I also have adenoma polyps scattered through remaining ileum.
Just wanting to know really is you can still eat or whether it is supplemented with feed through NG tube or tpn and how you are in general? (my surgeons are most concerned about join at end of jejunum and join between oesophagus and illeum. They have estimated 5% death rate during surgery which I thought wasn't too bad but say fatalities can occur within 1st 30 days after surgery too).
I have been given estimate of 12mths to develop stomach cancer (if I don't already have it) and for it to spread so my option was to schedule surgery now whilst there is a window to do so or do nothing and wait for the inevitable (surgery could therefore shorten my life if I die or prolong it if successful).
Thank you for reading
Jennifer
Hi Jennifer
I can't help with your question about eating but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' your post back to the top of the discussion list where it'll be more easily seen.
If you don't get any replies you could ask your CNS (cancer nurse specialist), sometimes referred to as a keyworker, these questions as she should be able to help.
Wishing you all the best with your surgery.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
