My beautiful mum has just found out she has secondary PC in the form of numerous lesions in her lungs. She had Whipple in 2020 and an elevated ca19 blood test flagged up a CT scan. She's refused palliative chemo because she is feeling so well. The best she's felt ever actually. However they've given us a prognosis of 6 months to live . It's so hard to believe because she's so well. Will this get worse in the next 6months ? It's so hard to believe when she's up and about living her best life?
I’m so sorry to read your story. My sister (49) has the same diagnosis (Jan 22) and she also looks really well, I think partly because her pain is now under control. She moved in with me and I have noticed that she tires more easily as it progresses but on the days when she wants to go out, I take her. I also let her have what she wants and when, so lots of junk food being consumed here! The palliative care doctor told me that living with cancer is exhausting at times, almost like you’ve run a marathon every day. She tends to go out one day in her wheelchair but needs to rest the next day.
Im sure your mum will set the pace she wants to move at and while she’s well, she will want to make the best of every day. Make lots of memories with her. My sister went to Maggie’s centre a few times for support and she was able to join in with some activities there which she enjoyed. I’m not sure if this might be helpful and if there is one near you? It’s also somewhere you can go for support too. Perhaps have a little look on their website to see what they offer.
Sending love to you all.
Thank you for taking the time to read and reply. We are spending every spare hour with her. Lots of love to you and your family ..know you are not alone mums walking faster then she's ever walked because of the weight loss. That's why it's so unbelievably hard to believe the doctors prognosis xx lots of love to
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I know what you mean, my sister has lost weight and is finally the size she has also wanted to be. She celebrated with buying some Levi jeans. A few times my sister has looked so well I wondered if it was really true myself. From what the palliative care team have said, she is likely to keep getting more tired- very hard to watch. Take care of yourself xx
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