Hi all. First timer here. I was recently diagnosed with a benign carcinoid tumor in my lung and was just waiting to be given a date for a lobectomy. I had to have a gallium dototate scan before this and got a call last Friday telling me that I'm not having the op now. Turns out that they found more issues in my pelvic bone and my pancreas.
From my very limited understanding this likely means my lung and bones are secondary sites and this pancreatic thing is the origin. I'm of the thinking that this is late stage pancreatic cancer when it spreads.
I've got to have an MRI now and a chat with an oncologist. And looks like I'll be having chemotherapy. I'm not expecting this to be pleasant but I'm prepared to do it.
Reading through the posts here I do seem to be at the start of this in terms of treatment. I'm very touched by the stories I have read here.
I'm not feeling unwell at all not have I any of the symptoms I have read about. I did get type 2 diabetes about a year back and I'm wondering if this is linked somehow.
Is this typical of the way most people are diagnosed? How long from diagnosis to treatment would be normal? Should I stick with NHS care who have been absolutely amazing support so far or is treatment generally better under private care?
Sorry lots of questions! Maybe better asked of the oncologist?
