Has anyone had NAL-IRI / Onivyde ?
It is nano-liposomal irinotecan with 5-FU - I think in a nutshell a newer type of FOLFIRI
It is available in america as 2nd line chemo for those who have progressed on gemcitabine treatments, but not licensed by NICE/ NHS
Currently only available privately here, but PCUK have said we could ask the hospital for it to be prescribed on compassionate grounds
As it's not widely prescribed I'm struggling to hear from others who have had this treatment
Thanks in advance
Hi Antonia
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
Wishing you and your mum all the best
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi MrSky
The best way to get people to share their treatment experiences with you is to either start your own post asking people to tell you about their treatment experiences, or look at people's profiles by clicking on their username or profile picture.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi MrSky
I know how difficult it can be waiting for the results of biopsies and then a treatment plan.
I don't know if
anyone had part of their pancreas or any other treatment for this.
as I'm not a member of this group
To find out you need to start your own post, as currently you're replying to a post about chemotherapy.
To start your own post click on the box with the wording '+ Create new post' or '+', depending on the type of device you're using, on the home page of this group. You can read more detailed information on starting a new post if you click here.
I hope this helps but please get back to me if you need more help on starting your own post.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
