Has anyone had NAL-IRI / Onivyde ?
It is nano-liposomal irinotecan with 5-FU - I think in a nutshell a newer type of FOLFIRI
It is available in america as 2nd line chemo for those who have progressed on gemcitabine treatments, but not licensed by NICE/ NHS
Currently only available privately here, but PCUK have said we could ask the hospital for it to be prescribed on compassionate grounds
As it's not widely prescribed I'm struggling to hear from others who have had this treatment
Thanks in advance
Hi Antonia
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
Wishing you and your mum all the best
"Never regret a day in your life, good days give you happiness, bad days give you experience"
