So my mum had the whipples procedure at the beginning of December, she had a phone call appointment and was told the cancer was bigger than they thought and it had also travled in to blood vessels and lymphnodes. They haven't staged her cancer either should it be ??
They removed what they could but its still in the lymphnodes.
I'm now left with 100s of questions and not sure what this means for the future.
They recomeded chemo 12 weeks after her surgery, so we arnt sure of the plan yet
Shes currently still in hospital because she had so much fluid build up, they have taken her back off food by mouth and is being fed through a tube
Just feel a bit lost at the moment and full of worry.
Hello sorry for the late reply! .. she's doing well in herself at the moment they said they are going to carry on feeding her through the tube untill after chemo so she's strong and fit enough, but no other news, she's hopefully coming home Thursday.
How are you? Aby news about your dad?x
They haven't said anything yet as they have been focusing on getting her back on her feet, her surgery was in a different hospital to the one she will be having chemo, so she still needs to have an appointment with them, it won't start untill March so I'm unsure of when she will meet them either to go over things.
She did speak with the specialist and she said that lymphnode are usually very responsive to chemo treatment and she thinks the treatment will be more aggressive as it is had spread to the lymphs and could have travled.
I'm keeping everything crossed for the scan results, hope your holding up as well as possible, keep me updated x
Hi, that's very kind thank you.
Well, am very frustrated today if I'm honest - it was Dads long awaited latest scan results appt today, however this was cancelled as the results hadn't been read or reported on! Annoyed doesn't really cover it- I know there are issues with staff shortages thanks to blasted covid, but cancer patients really do need to be priority and I feel very let down and upset today, after weeks of waiting and gearing up.
Dad is brushing it off, oh well these things happen!- well, the truth is they shouldn't and its unfair.
Mum and I have been going out of our minds, esp as at the start of last week, Dad was really quite unwell.
But, I can't do anything so the agonising wait continues until we hear more....
How are things with you, any further forward now?? x
Oh I'm sorry to hear that, I completely understand your frustrations and upset, the wait between feels so long and worrying, I hope they dont keep you and your family waiting much longer.
It's such a frightening time and the unknown makes things worse. It is so unfair. I hope your holding up OK.
Thinking of you x
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