Hi, I am allergic to both Paclitaxel and Docetaxel.
Diagnosed 18 months ago with HGS ovarian cancer. I did well through first round of treatment with carboplatin and surgery but ca125 markers are back up in the thousands despite being on Niraparib, so I never achieved NED.
I'm waiting for the results of my latest scan and feeling sick with worry.
Has this happened to anyone else? I would appreciate hearing other people's experiences.
Thanks
Not as yet ...but despite being as positive as you can possibly it can happen to anyone of us ...!
To go back up to thousands is a concern and could happen to anyone of us who despite thinking positively have to be aware of these happenings .
Treatment goes stage by stage and you as you know have done that ...first stage has to be correct before surgery and so on if having chemo first as I am soon .
High grade oc stage 4 is the worst and there are far more complexities ....as you'll know .
Its treatable but not curable and there is no quarentee with any of the stages because youve got to be realistically optimistic and look at it with hope of course but be still aware ....and after your 18 month journey to come to this is an example of that realism and I feel for you and we all must because we are on our journeys too .
If your CA125 went down and is now back up anyone would be greatly concerned and frightened as its almost like back to square one but ....but ...I wonder if you could say not wait and possibly ring every other day and say its due to excessive fear I feel sure people do that it stands to reason were not robots with no feelings or emotions.
You start your journey with HOPE ...we all do and people may say to me you'll be fine ...
Yes I have hope ...yes I have looked after myself ...yes I am aware of each step has to qualify for the next .
I am also aware after reading your post that it is a realism also ....included in the that positive frame of mind that I try to administer for myself .
I feel aftercreading your post a compassion and a as close as can be empathy because what you are experiencing right now is something that can happen to any one of us as much as we may not want to admit that but its not all clear cut and magically tossed away and we've a guarantee of another 100 years of life .
I see this whole journey as something that has to take place and we've to do all we can towards that success but I am also aware that we can only do that to a limit .
Ive thought endlessly about all this and when I read your post you have mirrored my thoughts that accompany alongside all my positive thoughts and I am sat here thinking of you as ive prematurely put myself in your position right now also .
What would I do ...??
Firstly even if youre scared ring your clinical nurse to see if the scan has come through .
Get real genuine friends and family to be around you as much as possible although unless cancer sufferes themselves I know how isolating it can still be around them as they've not got it ...to us its a matter of life and our fear of looming demise .....but you gotta get answers fast and keep in mind sometimes one last try whereas you might not have bothered diue to a disturbed desperate mindset (which is quite acceptably so ) !
I write because I am not being negative towards myself or any pending treatment for myself or anyone.....but I am being realistic !
We could all succeed but we could all have the same thing happen and not immediately but 2 years down the line even .
This has happened to you and we cant be in denial it couldnt happen to ourselves ...we hope not of course ....as hope is sometimes all we have in things.
Interrupt the wait ....its not nattering them they understand.... its for you to have done something as much as you can towards finding out ...about that scan .!
Even if they cant tell you today ....youve done something towards it today .
Let them know youre petrified !!
I havent started my treatment yet but although I have hope ....I resonate with you about the possibilities ...even though I sensibly focus on the positives ...I see it all as a whole .
What youve written is exactly what ive thought can still happen .
I wish I could take that away and ease your mind !
Wishing from a stranger may be all well and good but right now you want answers as to why that CA125 has risen !!!
Anyone can sense that !
HOPE ! 
