starting out & hello

Hi Lilylil520009 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

It sounds like you've been through a great deal so I can understand you wanting to hear from others who have had treatment for ovarian cancer and I'm sure some ladies will be along soon.

While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Hi there
you have certainly not had a good time!

I am so sorry you have to go through all this on your own!!! I know that I rely totally on family and friends to support me physically but more importantly mentally!!!’

I am currently recovering from the the surgery you will be having!!! It is tough!!! But , don’t let them discharge you until you are ready, any doubt say no! They are always pushing to send you home!!!

I am wishing you all the best!!! ️️️

Thank you Marigold, they've put on my notes I'll be in two nights. I will see how I get on. I've read that some women go home the same day - I can't imagine that at all. I have an OT coming to assess me in my home so that's good. I'm thinking the strong meds I'm on for arthritis will help too, trying to find positives. I just want what ever it is to be gone. Wishng you well in your recovery.

Hi, sorry to read about the awful time you’ve had. I had my operation in June 24. I too remember being overwhelmed by all the information about the operation. I did try to keep walking before my operation, I think it helped recovery. Being scared is understandable, it’s a tough operation but it’s doable and amazing how our bodies want to get better. Do you have anyone that can help with dog walking once you’re home? The first few weeks after the operation I needed help. No lifting anything heavy etc.., it’s hard not knowing what the actual diagnosis is too , once you know exactly what you’re dealing with and have a treatment plan it’s weird but somehow easier to deal with. Best wishes x

Thanks for your message, I expect by now you're over the op hopefully and winning with any further treatment.

Yes, uncertainty is difficult. Good you describe it as doable, I'll hang on to that.  I walk everyday with my dog, and after the op one daughter will have to take time off work and travel to be with me a few days. Her sister has a new baby but is planning on staying with me on and off.

I think I am one of those people who finds it hard to be looked after as I have been fiercely independent all my life. I've always been the problem solver and carer in my life, and professionally, and age and health have caught up with me and adapting sometimes defeats me. Until about a year ago I was helping on an allotment and gardening projects, running and all sorts of activities and had a social life. Now I'm quite indoorsy and into mint Aeros if I'm having a tough day. Coming into this online community has sort of focussed me to face up to things better. Your comment about when there's a plan it's somehow easier makes sense to me. 

I would urge anyone who is struggling to join these commnities and/or phone in because even if you have partners, friends & family sharing how you're really feeling or the issues is not that appropriate always. 

May you be well 

Hi, yes thank you, I’m well recovered from the operation, and have adapted to living with ovarian cancer. I have a good quality of life , enjoying my retirement and going on holidays. In the early days when I didn’t know what was going on, I tried just to stay in the moment. There is a lot of information on the internet, some helpful, however I remember scaring myself with over searching. If you are worried about ovarian cancer as an outcome, stick to searching charities such as Ovacome or target ovarian cancer that specialise in ovarian cancer. Sounds like you’ve had an active life, getting out in the garden can be such a good distraction. It’s hard being vulnerable and particularly when so independent. You will get through this time. Take care. 

Thanks again for what such a  calming and reassuring message. I hadn't heard of Ovacome which I'll visit. Target Ovarian Cancer was helpful when I was deciding whethert to make a complaint or not. Busy making a playlist for hospital. btw, somewhere on this website I found this - https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf - wish I'd read this when recovering from sarcoma in the past. Ordered some Tisserand essential oils roll ons. Warm wishes.

I am a fit 61 year old and they discharged me on day 2!!!! It was a massive mistake!!! Thankfully I am a nurse and had plenty nurse care from friends! You go fromPCA and wound infiltration to just paracetamol!!!

if you are at home alone you need at least 4 days in hospital!!! Please, trust me on this!!! ️️️ Hope all goes ok! Stay in touch! ️️

Hi Marigold. That's useful info, thanks. Got my date today - 13th November. My daughters will take it in terms to stay over for about a week {one of them is an OT} It's in my notes for a two night stay after laparoscopic hysterectomy and BSO. I will  see how it goes as there's other stuff too but I shall bear in mind your advice. Stay well 

Hi there! If laparoscopic there is less pain so not so many days needed in hospital! But trust yourself!️