starting out & hello

  • 0 replies
  • 65 subscribers
  • 73 views

Three years ago GP sent me for a scan suspecting ovarian cyst or worse. Found a cyst, referred to hospital gynea dept where the cyst was dismissed as 'they come and go' (but they don't in post-menopausal women). Over the subsequent 3 years had 3 hysteroscopies for endometrial hyperplasia and a coil fitted. Bleeding stopped but hyperplasia still present. Consultant suggested hysterectomy, I hesitated, she read my notes and noted I hadn't had a scan in all these years, phoned me day after scan as mass on one ovary found although bloods do not suggest cancer. Due to have hysterectomy and bilateral salpingo-oophorectomy. I've made a formal complaint as the ovarian cyst was not monitored. My issue is that it might be cancerous, and anyway even if it is not it might have been but will not know until after removal. I do not want this hospital to treat other women in this way. Where I am there have been incidencies of similar negligence publicised. I suspect the head of gynea and some in MDTs are incompetent.

At the pre-op appointment I felt bombarded with information about pre-habilitisation and re-enablement - has anyone else had information about these? New to me. I don't think I will need re-enablement, it is someone doing the things I can't do post op rather than teaching me how to do things I will need and the pre-habilitisation scares me - I don't think I can go and do exercises three times a week for three weeks because of arthritis and feeling really poorly already.

Had BP meds doubled and pain relief increased this week and trying to be really kind to myself whilst very scared. I'm 73, live alone with a dog and a cat and anxious about how I will manage after the surgery.  I've had sarcoma in the past and other illnesses and unfortunately lost a lot of trust and faith in medics over the years - that is not to say some doctors and nurses have been great but quite a few not.