hi all I am new to the group, I was diagnosed last June with a 30cm tumour in my ovary and attached to my bowel. I had my surgery in July which took 10.5 hours and I had a 95% risk of dying in the surgery! I survived and I am here which I am forever grateful to my amazing surgeon and my MacMillan nurse that was with me through out everything.
its only now that the realisation of how ill I was and how close to death I was, that it’s sinking in and only because my surgeon this week asked me how am I feeling about everything that 9 months later and reading all my letters that I broke down with him and all my fears and worries just exploded out.
just struggling to find a way to deal with my emotions.
how do you cope? Has anyone else gone through similar experiences?
Hi YCW
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Hello. I had a shorter - (4 hour) op - bilateral salpingo oopherectomy on November 4th. The op itself was successful but left me with some loss of sensation in my right thigh. However complications with constant infections, residual infected fluid in my abdomen, chronic diarrhoea, constant nausea, dehydration, loss of 2 stone in weight, rounds upon rounds of antibiotics for over 2 months and more hospital stays. My hair started to fall out through stress. Eventually I ended up with a full length DVT and pulmonary embolism. I was told i was lucky not to have lost my leg. I felt I couldn't cope and I'd had enough. I couldn't see any way forward. I was urged to take antidepressants which I resisted as I felt the reason I was crying, exhausted and depressed was due to my circumstances and not a state of mind.
Honestly, it felt like it went on forever but on Jan 2nd I stopped the antibiotics and the nausea and diarrhoea went away. I had a few weeks gap before my chemo started (4 Feb) and tried really hard to look forward. I now get outside everyday - rain or shine as I feel the fresh air helps my well being. I even went to Parkrun yesterday (although my dvt means I cant really run but I can walk).
I have a diary which looking back now feels like I was in a different dreadful world. Despite the chemo, ive turned a corner and you will too. One day at a time. Find what makes you happy - for me fresh air and a free waitrose coffee have proved useful! You'll get through this xxxx
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