Newly diagnosed

  • 13 replies
  • 67 subscribers
  • 403 views

Hi all. I'm 40 years old. Just received my stage 3 diagnosis yesterday. Feeling pretty overwhelmed at the moment. No family history. No risk factors. Still in shock. 

  • Morning,I have follicular lymphoma which was diagnosed on 22nd may this year,I agree it is very daunting to be told you have a certain type of cancer,the  key thing is is to be positive I know how you r feeling it's a big shock because I didn't expect anything like that being newly diagnosed with it.

    So what is your next step?.

  • Thank you for taking the time to reply. Biopsy first to work out what type it is. I'll need 3x cycles of chemo followed by significant surgery, full hysterectomy etc, then another cycle of chemo. I barely even ever get a cold. I just don't get it. 

    How has your time been?

    It's one of those things you think won't happen to you isn't it. X

  • No worries, it will be my 4th cycle in September, I started with shortness of breath which I have never had,I had a chest x ray basically they done biopsies of my right lung and found in all over the coming weeks 4litre fluid and a mass by my chest wall,they had to grow the chest biopsy and after about a month it came back saying I have a slow growing follicular lymphoma, which isn't nice ,it's treatable but not cureable, but after 3 cycles of my chemo my chest does feels lighter than it was,sorry for babbling on but it's nice to talk to somebody,so your next chemo is after ur hysterectomy?.

  • My worse bit of the treatment is the nausea and fatigue but I have meds for the nausea which really help.

  • I've got to have 3 cycles of chemo first then surgery then chemo. The fluid in my belly is what gave mine away. I can barely walk. They found the cancer and ascites. 

  • Oh dear I'm sorry to hear that, is it very painful?

  • You poor thing. I do sympathise, I was diagnosed with stage IV in April at the age of 33 (I'm 34 now) and same as you, no family history, no risk, fit and well, bla bla... cancer doesn't seem to discriminate does it

    This is a very lengthy topic but let me know if you want to chat or if I can help in any way. It's fine to feel whatever you're feeling, you don't have to be positive all the time. Xxx

  • Mine was found as I thought I had a chest infection and the mass showed up on the x ray in December 2024.

  • It would be great for us to speak more. Being so young doesn't feel fair. What's your treatment plan? 

  • The gold standard is 3 chemos + surgery + 3 chemos. In my case cancer wasn't giving up easily - we couldn't do surgery after 3 chemos as it didn't shrink, it did stop the fluid though. I'm 6 chemos in, finally with some progress and waiting for surgery date. My surgeon decided to refer me to different hospital as my spread is complex, not the kind of special I ever wanted to be...