New here. Rare cancer

Hi same for my daughter she has ccc clear cell carcinoma of ovaries 3b was having chemo but caught pneumonia,there trying to shift this and hopefully back on chemo ,I know there on about surgery complete ,she’s only 25,why is this happening,Zoe’s is very rare and aggressive,let me know all happening how u coping ? Hugs

Gosh, is CCC rare? I dont know, its all so new. 25 is no age is it, thankfully shes young and will fly throigh surgery. Are they booking her in soon? Can they spare fertility?x

hi ya yeah they said its rare and aggressive cancer so they were doing trials on her and gladly the first one worked and her numers went down by 300 leaving 4003 and sadly shes got pnemonia which theyve been treating her for the last 6wks with no success yet but fingers crossed then she can get on with her treatment so basically we dont know when surgery will happen ,sadly no kids for her and husband which is another thing they will have to go thru.hope youe doing ok 

Poor baby, at just 25 im sorry to hear this.....life can be so cruel at times. Sending strength to you x

hi thanks for that have chemo the good thing about yours theyve caught it earlyish and youve had surgery so thats good it hasnt leaked like zoes .your only 44 dont give in go for it plz

Hi, I’ll be 44 soon and I was diagnosed with ovarian clear cell carcinoma last year. I had operation and after that 6 cycles of chemotherapy at Derriford hospital in Plymouth.  
I’m sending positive and healing vibes towards your way. And if you would like to talk about it, I’m willing to talk. All the  best wishes x

Thank You , I am finding it hard. How was your chemo,were you able to work and is CCC rare? Xx

Hi, I experienced some side effects; but I believe  everyone might have slightly different, same or similar side effects. I remember, before I started my chemo, when one of my chemotherapy nurses said: it’s like paracetamol leaflet - it’s a long list of different side effects and you won’t get all of them. I wasn’t working, but when I felt I was trying to go for a walk or at least to go outside and being in the garden made me feel a little bit better. But as far as I know the walks are “healthy” for us. I try to walk now as it helps my both mental and physical wellbeing. And as far as I know Ccc is rare one - no comment. I’m know how you feel …. Please, don’t hesitate to as more questions. And it’s worth finding out if there’s a cancer support centre nearby you, so you could get suitable support, advice and complimentary therapies xxx

*Please, don’t hesitate to ask more / any questions.