Thank you to everyone who posts here. It has truly helped me not lose my mind that last few days. I went to GP to follow up on severe abdominal pain on a couple times (first early on in period 2nd a week later). GP sent me to A & E and further to CT scan I was sent to referred to Gynaecology. Was told I had 9cm mass around my left ovary. Ultrasound scan found it tricky to spot it, but towards back. I had a womb biopsy (I think!) as couldn’t do immediate biopsy of the mass. Consultant then said womb lining thickened to 10mm. She also mentioned fluid in abdomen and maybe something on lymph node. She basically told me flat out to expect I was dealing with cancer as I am 54, but still having regular periods and my father died of bowel cancer (was 40 yrs ago) but as soon as long ago don’t have understanding of if genetic link (bowel and ovarian linked). I have another CT scan to check lungs as not shown in previous (lowers were ok) and MRI on 11/2/25. I am accepting of fact that I am very likely to be dealing with cancer and was told likely to be chemo, then op, then chemo, but waiting on MDT and further results to confirm. I have not asked for CA125 as I know not definitive. I know I must stay positive, but the statistics are terrifying for prognosis - particularly if Stage 3 or 4. Looking for some clarification on whether they are as dire as they look?
Hi Rackelsi and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I know how horrible waiting for results can be.
I noticed that your post hadn't had any replies yet so responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your symptoms and tests to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
I'm so sorry to hear that it has been such a shock to you. Diagnosis can be a messy business. In my case they knew I had cancer but couldn't find exactly where it was. It turned out to be stage 3 ovarian and after chemo and surgery I am now in remission. From first chemo to last was six months, with the operation in the middle. It's a well-travelled path as you will have seen from the forums and I for one am optimistic that it won't come back. Think positive and believe that your MDT will find the best way to make you better. Good luck!
Thank you Spooks. I am so pleased to hear you are in remission and feeling positive about it staying that way. I am a little further on, but still awaiting decisions from MDT on course of action. From assessment of scans and my CA125 of 1234 the consultant stated they strong believe it is ovarian cancer. The issue at moment is them deciding on whether a biopsy is possible as they clearly don’t want to disrupt the mass itself and not sure if they can get to the lymph node that looks dodge. My CT of chest showed a bit of fluid under my lungs but not abnormalities within lungs themselves. I understand until they have rummage they can’t be sure if any signs of tumours elsewhere. I was expecting the same plan as you, but they may have to do open surgery and then chemo. I understood the principle of shrinking prior to surgery, so now trying to process that. I guess I just have to trust the team of specialists.
wishing continued remission.
Hi ️
I’m so sorry you’re going through this, not knowing is the worse. I was diagnosed in October and had op 29th Nov. I’m stage 3C and I’m now awaiting chemo which is in a couple of weeks. Everyone is different but I tell you what my nurse oncologist told me, don’t focus on stage and keep your hopes up, you are strong my darling and keep focus on what you can control now. Once the MDT is sorted and there’s a plan you’ll feel better ️
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