Just diagnosed

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I was told 5 days ago that I had cancerous growths on both ovaries . I have an MRI still to come in a weeks time then a MDT will decide on a course of action. My feelings are a mixture of fear , anger and sorrow for the loss of the life I envisioned. I feel terrible for my lovely, supportive husband. I never wanted his life to shrink with mine. We have been together for 56 years. I knew we would part one day …. but oh my god , not like this !! I think I’m in shock but trying to put a brave face on it …. people keep telling me about others ‘ fantastic recoveries …. makes them feel better I suppose and I understand that. I just want to speak to others who have been on this horrible journey to try to get the strength together that I know I’ll need. No one to blame … symptoms were put down to my diverticular disease. Developed and ignored by me whilst I was away from home looking after a seriously ill adult daughter. 

  • Hi, your feelings really are understandable, it’s very early days and you will be in shock. I remember last year looking at crocus thinking that it would be the last time I would see them. I’m still here and can see crocus popping through one year on. Good luck with scans this week. Sending hugs. X

  • Hi 

    I’m just about to start Niraparib tablets after having extensive chemo and major surgery at Christmas all of which has gone well, is this one of the new treatments you talked about just wondering? I was diagnosed last May which was a complete shock as i didn’t feel unwell, I really try to stay positive but it’s hard feeling all these months have been just treatment and feeling unwell , I don’t seem to be able to see a future living life as it’s supposed to be .

  • Thank you SEM.24 .This gives me hope … as does the sunshine today. 
        I look about 7 months pregnant … because of the ascites. Just asked my husband if he wants a boy or a girl this time. We both had a good laugh .. makes a welcome change from  crying !! X

  • Sometimes it’s good to laugh, not easy I know. I hope you get some relief from the ascites soon. It takes time to adjust to the diagnosis, finding hope is tough, but is there. After my surgery and chemotherapy I planted spring bulbs, daffodils , I enjoyed getting out in the fresh air, I can see them starting to come through. One day at a time, it’s good to have a good cry too. You can do this. Xx

  • For me, the ascites was the main symptom of my ovarian cancer.  Because of it being so cloudy nothing could be seen in the scans.  But within 3 days of my first bout of chemo the ascites had gone.  I had 4 rounds of chemo and then the big debulking operation to remove all the cancer and then 2 more lots of chemo.  Horrible but bearable.  And now I am in remission.  Fingers crossed this will be your path too.  Don't despair!  Lucky you having a supportive husband to attend all the consultations and scans with.  You are not alone!  You'll get through this and the snowdrops will look all the sweeter next year!  x

  • Thank you so much for spending your time sending this message. I am so happy for you and desperately wish for the same outcome. 
        Both my children were going to  ring and speak to me tonight but I’ve asked my husband to put them off. I know it’s cowardly but I can’t face it. I think it’s because in my head it would be sort of saying goodbye  . 
        I am the sort of person that wants to know all the details and at the moment I feel out of control. 
        I know I’m lucky in my husband . He is selfless and I can see how he is struggling too. He’s a practical sort and hates seeing me suffer and not being able to help. I had a sobbing fit today as he struggled to put on my socks ( I find it painful to bend now ) which then turned into us having a laughing fit. But I felt such a nuisance even though he doesn’t see it that way. 
         I can’t tell you how grateful I am to each and every person who has responded. I genuinely don’t know how I would have coped without you over the last few days. So thank you xx

  • Hi, I have 2 adult daughters, I didn’t tell them until I knew the treatment plan, it made answering their questions easier, and gave me a little more time to get my head around it all first. You will know when the time is right. Xx

  • Yes , I think when I’ve got a treatment plan …if anything can be done … I’ll be in a better place to talk to them. Xx

  • There will be a treatment plan for sure, hang on in there xxx