New here waiting on some blood tests and ultra sound

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Hi all, I had my 50th birthday in June of this year and I had an autism diagnosis in February so still getting adjusted to that diagnosis and learning about Myself l Had a few tattoos done in a kind of celebration of sorts. Sorry if that sounds weird to some. But was a huge weight of my shoulders and explained so much about myself and my life. Well about a week or so after having an all day tattoo sitting I started getting really weird symptoms burning tongue dry mouth and dry eyes pain all over my body. lump under my right ear radiating the most excruciating pain I have felt in my life gallstones was a breeze compared to this . which I just thought at the start of all this was a trapped nerve so I went to the doctors when the pain got that bad I was waking myself up calling out in pain. Well I went to an urgent treatment centre and told them all the symptoms at the time and was diagnosed with cellulitis and given steroid and antibiotic cream. And told if it hadn’t gone in a week to go back to doctors. Unfortunately also have depression and anxiety for this I take a SSRI called sertraline so the pain killer option that I was told was just paracetamol. Due to drug interactions with ibuprofen so paracetamol it .  I am currently taking the maximum daily allowance as the pain is just as bad but never mind. So needless to say I made an appointment to go see a doctor as this had not clear up and got lots more symptoms before I made the appointment if you know anything about some autistic people. My own trait is that if it’s something that is important to me I research it as much as I can and soak in as much knowledge that I can find. Who know I guess I care about my own health after all  I downloaded an app for symptoms called ADA that when you put in all the symptoms it’s give you the possible diagnosis’s at the top was something called Sjögren’s syndrome so off I went researching and soaking in the knowledge ofc ovarian cancer was on the list but I personally ruled it out as when I looked at NHS symptoms of it I didn’t have any of them or so I thought. So I got my appointment I took my long list of symptoms thanks to ADA s help along with me to Doctors and explained that I had been researching my own health symptoms along with ADA s help had come to the conclusion that I had sjogrens. After telling the doctor my long list of symptoms the Doctor agreed to send me for blood tests for it to start of the journey of that so got result back and I guess they pointed to cancer for the doctor as I got a phone call asking me to have to additional tests c19-9 and a c125 he didn’t tell me the codes or that they were for cancer I guess due to my Autism and Anxiety didn’t want to give me more of it I guess but I have access to my own results and appointments and other medical stuff on an app called Airmed/system online so after they had booked in the 2 blood tests I couldn’t remember the times when writing them down so logged on to double check and spotted these codes and did a bad thing and googled them and yes I know this is not always a good thing to do but I blame the autism I had too . Anyhow so now I have my blood tests booked for the 21st of nov and I am waiting on an appointment for an abdominal ultrasound. And also a chest x-ray but that’s to do with Sjögren’s syndrome I think lol  so at the moment for me I think it’s 50/50 on which I have am praying it’s Sjögren’s with all my heart at the moment but I lost my mum in 2015 to endometrial cancer so deep down I am leaning towards cancer but trying to stay positive. Anyhow thanks if you got this far I appreciate any and all feedback.

Had a few tears last night so I joined so I could feel like I am doing something to help myself and to see if there are any others in the same boat .

  • Hi  

    It does sound like you're going through a great deal at the moment and I hope you get some answers from the medical professionals soon.

    I'm not a member of this group but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    ((hugs))

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