Hi!
I'm new to the group and newly diagnosed (at last) with clear cell carcinoma of an ovary - it's taken me just over 2 months to get to this point.
Started with unexplained DVT & numerous clots across both lungs; subsequent abdominal CT scan identified large mass behind my uterus. Given anticoagulants to treat the clots, which caused heavy pelvic bleeding, resulting in anaemia.
Referred to gynae specialist, plan was to give my lungs time to recover & go straight to radical hysterectomy; however at my pre-op the anaesthetist refused to go ahead due to my worsened obs & breathing, and I was admitted to a ward.
Ended up being in for 17 days, 5 litres of fluid drained from my abdomen and a biopsy taken from the mass. 2nd CT scan showed significant growth of the mass.
I saw the consultant last Thursday where she gave me the diagnosis, preference would be to go straight to surgery, but I'm not fit enough because of the lung problems & anaemia, so I'm being referred for chemo & then pencilled in for op in February followed by more chemo.
How do I get through this, I'm terrified that it's all taking too long, I know the tumour is growing significantly and also that this type of cancer doesn't always respond to chemo. I feel helpless, what can I do to improve my health, physically & mentally?
