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Hi KittyKatz

I saw your post and realised that you have not had a reply yet and wanted to let you know your post is reaching us. :-)

This is all very frightening for you. 

Have you got some friends or family who can support you?

It is not easy when all you can think about is the disease. I would contact the GP and ask to be referred to the Macmillan team in your area, we have done this for my Mum who is 3C High Grade Serous Ovarian cancer and their care for you as an individual coupled with their vast knowledge and expertise has been and continues to be amazing, I don't know what we would do without them.

Sending you love and strength.

Francesca x

Hi there - it is so hard waiting isn't it.  The results of my MRI came back and there were 9 cysts on my ovaries - some over which are over 7cm.  I'm not getting surgery until December and I'm also concerned about them growing.  they can't tell what all of the cysts are until they have done a biopsy but two of them did look to be forming separations within them.  I appreciate that this is all very early stage 1B etc. but I'm desperate for it not to develop further.  I also get pain in my abdomen and tops of legs - trying to carry on with everything as normal in the meantime but it isn't easy.

Hi KittyKatz

You must stay positive. You will get through this . I just pulled out of a stage 4b ovarian. I had 3 rounds of Chemo and Surgery and then three rounds of Chemo again. Believe that you will respond well to surgery. Stay encouraged. Drink water to keep you hydrated. You can get through this . 

Hi. I also have clear cell ovarian cancer and had DVT for 6 months before diagnosis. Mine is stage IV and was growing aggressively. It’s important to keep as positive as you can and keep hope.

I’m chemo only. I don’t have any ovaries as I had a full hysterectomy 3 years ago before my diagnosis. Mine is a tumour in my colon caused by endometriosis.

I’m naturally a positive person and this has really tested that attitude! But every time you feel the worry, allow it to be like that for a short while then come back with the positivity and hope. I wish you well. 

Can I please ask how fast your cysts grew?

Hiya RothersV, 

I just joined, today, total novice and saw your post. 

It's the waiting isn't it. I am at stage of having GP made 2ww referral last week Friday as on Friday ultrasound showed 3.7cm multiseptated ovarian cyst. I do feel pressure and I think I have now referred pain under ribs near liver (Ferritin higher then normal) lower back, shoulder and strange feelings in right leg. 

It must be devastating and infuriating when missteps in care cause for development of it all to prevent easier faster option being pursued leaving patient to wait and get head around of the outcome of misstep. 

I just hope you get right treatment and fast and that it works like a miracle. I am.some steps behind you. Not sure if gyno or oncology gyno will be seeing me next after ultrasound findings report requesting to confirm or rule out malignancy. I fear time may be wasted sending me to gyno who is not specialist in oncology only to then have to wait to see oncology one. How was it for you? 

Sending love and hugzzz.