Hello - afraid it's another "how do I manage the anxiety while I'm waiting for results" post

Hi V

Sorry to hear this. You don’t mention what the next steps are? Has the radiologist reviewed your MRI and do you have an appointment with a consultant. It is at that point you will be given an indication of what is actually going on. 

As you will frequently read here, the waiting is the worst part. My advice is to fill your time with the things that give you pleasure; the things that you have control over. I recognise that this is psychological but it does reinforce the elements of your life that you have control over……and you do have control over a lot, which is important at a time when you feel powerless. 

I recognise all your symptoms (although I lost rather than gained weight) and I was diagnosed with ovarian cancer. I am now through chemo and surgery and living a very normal life filled with holidays, family and friends time, sport and even hair again! 

One tip - if you are diagnosed and will be having chemo, get your eyebrows microbladed. When I was feeling vulnerable with my hair loss it was good to see my eyebrows (which were over plucked in the 70s) looking so good. You will need to do this before treatment (post chemo infection risk). It was another way in which I took control. 

Best wishes 

Thank you so much for your reply.  I've been told I'm on the urgent ovarian cancer pathway and that the results of my MRI will be assessed and a report issued - following that I will have an appointment either with the same Gynae that I saw last time and we will schedule the appointment to remove ovaries and fallopian tubes - or it will be a meeting with the MDT to talk about what Chemo or other treatment I need.

Thank you for the heads up on the eyebrow micro-blading!

Hi RothersV

How are you doing now? I'm on the waiting train too; had a laprospcopy earlier this week and waiting for results on Weds. It's such an odd thing to be treated as potential diagnosis until proven otherwise, isnt it. 

Hope you're hanging in there x

Hi there,  I had pretty much the same thing as you.  Bloating and tiredness sent me to the doc in Jan and my CA125 came back at 615.  Scans couldn’t see anything because of all the fluid but analysis of the fluid showed ovarian cancer.  I had 4 lots of chemo, then the op to remove ovaries, omentum, fallopian tubes (where the cancer actually started!, and then 2 more lots of chemo.  I’m now through it and on maintenance drugs to stop it coming back.

i also had a prolapse just before chemo started, caused by all the fluid (ascites).  The operation has totally cured that.

It’s a time-consuming and arduous process but you can manage it and it will be worth it big time.  If they know where your tumour is they will prob remove it first & then give you 6 lots of chemo.

good luck!

Hi there Sppoks - thanks for the reply.   So I had my consultation with the Gynae and he confirmed that actually I have 9 cysts/tumours whatever they are and are around 5-7 cm each.  I've been told that I will now have a radical hysterectomy and a bilateral salpingo-oophrectomy so everything will be removed as the growths are in both ovaries.  Two cysts  in particular had some thick septations.  I'm honestly hoping that the surgery will be sufficient and that I don't need chemo.

I feel a lot better after the discussion with the Gynae team on Friday.  All very hopeful that the operation to remove everything will resolve it and that I won't need anything further.  I hope it goes your way on Weds - keep me posted.  x