Suspected ovarian cancer

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Good morning all

Following my ultrasound last week, I received a call from my doctor within 48 hours with results that weren't positive!

I have an anechoic cyst, size of a 50p,thick septation and traces of vascularity, possible daughter cysts alongside. I have lower back pain and pain around the right ovary, feel so sick i have to make myself eat.

I have blood tests booked in for tomorrow to test for the CA125 marker and been referred urgently to gynaecology which my doctor has told me to call tomorrow for an appointment if they don't call me today.

I've told myself it's nasty already but it's so hard to try and stay positive, how did people manage this? I would love to hear from everyone, support is massive through these time 

Xxx

  • I went through same with breast cancer Hindi think the worst and worry but I found telling people close to me helped so I had someone to talk to about worries 

  • Hi,so sorry you find yourself in this situation. Going through testing and waiting for results is so scary. I would say don’t google, but most of us do. A lot of information on the internet is out of date, and searching can be overwhelming. Hopefully all the tests will come with better news than you anticipate. If you are searching I would suggest sticking to this site or sites that specialise in gynaecological cancer such as target ovarian cancer and ovacome.  All these sites have support line number to call too. For now, try to stay in the present, I used mindfulness apps which helped to keep me grounded and sleep. The results of the C125 should come through quite quickly , and hopefully you will be seen soon by gynaecologist. Staying positive is not easy when you’re feeling so frightened, be kind to yourself, your feelings are understandable. Take care. Xx

  • Thank you both for commenting. The gynaecology department phoned me today and I have been booked in for a 20 min face to face appointment in a weeks time, I really wanted it this week, the waiting around is tough! 

  • Hi , waiting is definitely the hardest. You probably have already thought about this, just in case not, think about the questions you would like answered, write them down, take a note pad with you. If you have someone who can go with you that could be supportive and a second pair of ears. Whatever it is there will be a treatment plan for sure. Xxx

  • Thank you so much, I'll definitely take a note pad I wouldn't have even thought of that! Xx

  • Hi - I absolutely get where you are coming from.  I had some symptoms and was referred for an ultrasound (both internal and external) - they told me that they had found a growth (roughly the size of an egg) on my right ovary and also some fibroids.  Due to the thickness of the walls of the growth they could not tell what it was and so I have had to have an MRI scan (this was on Tues).  They injected a dye and I am absolutely terrified.  I'm waiting for the results of that but I am now hyper aware of all of my symptoms.  I had a CA125 test done and it came back with a score of 8 - I know this isn't high but I'm also aware that that isn't always a definitive marker.  I don't know what to think

  • Just here to offer support. The waiting is just awful. As already advised try not to Google. I am so guilty of it and have given myself so many sleepless nights.

    Macmillan are so helpful..I have had a chat with one of the nurses today,

    Look after yourself,  thinking of you.x

  • My ca125 level came back today also 8 but it still doesn't rule anything out See no evil its so nerve wracking isn't it! Sending positive vibes and thoughts to everyone through this journey. I'll will update on Monday after my gynaecology appointment