New to all this.

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Hi, I've just joined this group, as I've been told I have a high risk of ovarian cancer.

I'm waiting for an ultrasound, next Tuesday. Feels like it's a lifetime away!

All I want to do is cry. Any advice on how I can get through the next week without going mad? I have my family, but I don't want to put on them at this early stage.

Thank you Blush 

  • Hi Sammaz

    Firstly I am very sorry to hear that you are in this place and you have done the right thing in coming to this site because there is always someone who has experienced what you are experiencing. 

    I relate to the anxiety of what you are feeling because I was in your place in March last year. 

    Each day seems a long time to wait, doesn’t it? While everyone’s experience and way of coping is different, I hope I can offer some support for you. 

    While I understand your not wanting to share this news with your family at the moment, do consider who you could share it with to gain the support you do need. That is important to help you through the next few days or weeks until you have a definite yes or no diagnosis. 

    It could be worth finding the contact details of your hospital MacMillan nurses to ask about average timescales. I say this because while you have an ultrasound next week, the sonographer wont tell you anything. The scan will be analysed by someone else and the results given to the consultant, so Tuesday won’t give you answers. In addition it is likely that the consultant will want to schedule a CT scan to confirm any diagnosis. In my case the US was on a Monday, the consultant appointment on the Friday and then the CT scan the following Wednesday. There was then a 2 week wait until my diagnosis appointment. This all seems long however, the radiologist needed to review the scan and it had to be discussed at the multidisciplinary team (gynaecologist, oncologist and MacMillan nurses) meeting to agree the diagnosis and the treatment plan. 

    I recognise that this can seem interminable and can only offer you the hope that survival isn’t unusual.  I had stage 3 cancer and after chemo and surgery I am currently cancer free and living a very normal life. A friend had stage 4 ovarian cancer and 4 years later is living life normally. There are happy survivors around. 

    While you wait I recommend becoming as fit and as healthy weight as possible. Also focus on the elements of your life that give you pleasure. One of the benefits of cancer is it focuses on what is important in life. This will help with coping with the wait and also improve your ability to cope with chemo and surgery. 

    I wish you well over the next few weeks. 

  • Hi JackieL.

    Thank you so much for your reply.

    You have made me think that I do need to talk to my family, I do need their support to help me with this.

    I know it's very early stages for me, but you have put me a ease a little, knowing that I can ask for advise on here or have a shoulder to cry on. 

    So happy you are cancer free and enjoying life Relaxed

    Thank you again.