Still getting used to saying it out loud

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It makes it more real somehow but at the same time still feels pretty surreal - like a movie scene cliche of the self-help group that concludes with an awkward group hug.
Hi I’m Eekoh and I have ovarian cancer!

8 weeks ago life was normal. Fast forward to now and it’s a whirlwind of tests, scans, appointments, sympathetic expressions and an increasingly uncomfortable belly that looks distinctly pregnant. It’s a good job I wasn’t a fan of skinny fit jeans!

Big tumours on both ovaries & spread to peritoneal cavity suggests stage 3b/c - unfortunately a fairly typical stage for diagnosis with this sneaky beast that hides its early development. It’s not great news but not the worst either, no spread beyond abdomen and major organs unaffected so far.

Biopsy tomorrow will confirm the exact type & grade then treatment plan looks like it’ll be chemo first, try to fry the tricky peritoneal bits then if all goes well it’d be the big surgery later on. Sounds odd to be hoping for a hysterectomy but that’ll be a huge milestone for what direction my treatment goes and I’m sure I’m not alone with this experience.

Short term, I’m also getting some fluid drained off at same time as biopsy.  I know it comes back but omg I’m looking forward to a bit of temporary relief and being able to eat a proper size meal again!

Feels like the start of a long road.

  • Hi, 

    on 13th July I was diagnosed with stage 3c ovarian cancer. No real symptoms other than bloated belly which I put down to menopause, hence the late  presentation, which is typical of this type of cancer. 

    I was only diagnosed after I had some urinary issues. The masses (one on each ovary & quite large) were pushing down on my bladder. 

    I had a radical hysterectomy on 14th August. On 30th September I had the first cycle of 6 of chemotherapy. 
    My next cycle starts next Monday. 

    its been a whirlwind, but things have moved very quickly. None of my major organs seem affected. 

    xx

  • Morning Eekoh, so sorry to read about your diagnosis. I was diagnosed 3c OC in January and can relate to the whirlwind of tests and scans at the start. I had minimal symptoms too so the diagnosis was a big shock. I would say don’t google, but I know many of us do. So much of the information is out of date and scary. If you are searching I would suggest sticking to macmillian or sites such as ovacome or target ovarian cancer that specialise in OC. Nine months on from my diagnosis I’ve had chemo , surgery, chemo and now on maintenance. Pleased to say at this time there is no evidence of disease. It’s been tough , but to be honest all doable. It’s amazing what can be done. Take care and hope biopsy goes ok tomorrow. X

  • I totally relate to what you are saying. When I was diagnosed a year ago and said the words I have cancer, I always felt that I was saying it about a cardboard cut out who looked exactly like me, not about me. As the weeks passed and the news sank in the two personas merged. I also found it helpful that the treatment plan wasn’t rushed as it gave my husband and I time to adjust  to this new situation.

    You are not alone in hoping for the hysterectomy, I too was happy for anything that removed this tumour from my body. Given I was post menopausal my womb wasn’t serving any purpose in any case Relaxed️. 

    the build up of Ascites was what caused me the greatest discomfort so it is a relief to have it drained and, as you say, be able to eat normally and not feel sick. 

    In wish you well with the treatment plan and a full recovery. 

  • Hi Eekoh

    i feel for you, I went through all of this in the last 10 months. It is a long hard road but you will get there. Enjoy getting the fluid drained as the relief is instant, I had 8 litres the first time I was drained! Best of luck and remember you’re not alone x