New & slightly confused

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Hi. Just wondering if anyone has been diagnosed with HGS Ovarian Stage 4, but it can’t actually be seen on the ovaries or surrounding area.  Test results from biopsy/op/ fluid from around lungs show I hv this disease. But, I am told, I am unusual as the disease cannot be seen in the gynae area???  However diagnosis is correct as the markers/cells indicate this.

just wondered if it was only me???

thank you

  • Hi. I don’t have the same as you but I have a growth in my colon which is made from gynaecological cells so I have been diagnosed with clear cell ovarian cancer. I don’t have any ovaries or reproductive system. They’ve said mine is from endometriosis. I’m told I am unusual as well so you aren’t alone in that respect Smiley