Hi. Just wondering if anyone has been diagnosed with HGS Ovarian Stage 4, but it can’t actually be seen on the ovaries or surrounding area. Test results from biopsy/op/ fluid from around lungs show I hv this disease. But, I am told, I am unusual as the disease cannot be seen in the gynae area??? However diagnosis is correct as the markers/cells indicate this.
just wondered if it was only me???
thank you
Hi. I don’t have the same as you but I have a growth in my colon which is made from gynaecological cells so I have been diagnosed with clear cell ovarian cancer. I don’t have any ovaries or reproductive system. They’ve said mine is from endometriosis. I’m told I am unusual as well so you aren’t alone in that respect 
Just so strange & everyone is like ‘but how can that happen?’ ‘ don’t understand it’. Well neither do I 
I hv some more questions for next time I see oncologist so I can get it more straight in my own head.
but nice to have contact with another ‘Unusual’ 
My understanding is that it is to do with the type of cell and they then decide treatment based on that. If they tell you anything different, I’d be interested to know 
