Ovarian Cancer - Frustrated with the waiting for diagnosis

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Hi PoppyRose

Sorry to hear you are having a hard time of it.

I have have almost identical to you reading your post .

See my profile. 

Waited  months as well.

They still don't know where my primary cancer came from. 

Finally I've just heard they are doing a complex MDT on me tomorrow; with a view to getting me in fast for big surgery  

I Would suggest finding out who your key worker is from consultants sec and call her.

This may help to speed things up and give you info you feel is missing.

You can make a complaint about the time waiting as there are government limits. 

Also call the Macmillian nurses to ask about the procedure with your biopsies. 

It shouldn't be something that causes spread 

You are likely worrying unnecessarily.

Was your biopsy painful? 

Mine was shockingly so.

Hi Cheekkat

Thanks so much for replying.  Just read your profile..   wow you are so knowledgeable! I feel totally bewildered by it all so definitely should get in touch with MacMillan nurses as they might help me understand a little bit.  

My biopsies weren't overly painful just uncomfortable. Were your biopsies in same places?  At least there actively looking for where your primary us.  Colon & breast have now been mentioned but no colonoscopy or mammogram been requested. 

I'll hopefully get results of my Omentum biopsy today but not holding out much hope for it being primary.  CT scans tomorrow hopefully they'll be rushed through.  I really don't want to be opened up for exploratory. Heard so many scary stories.  

When will you know results of MDT? Xx