Hello from Mo

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Hello all

I am new to the Forum and was diagnosed with Ovarian cancer in November 23. I was first told Stage 1 and then after PET scan stage 3. Unfortunately the oncology team Consultant and registrar did not appear to communicate clearly with each other so I received the news in quite an offhand manner from the registrar

My partner passed away from Pancreatic cancer a few months before so it's been hard.

I had chemo before and after a TRH and Omentectomy, first chemo was successful and I am now awaiting a scan before going on to Niraparib (the cancer is not genetic but am apparently platinum sensitive at present).

I have a question about side effects, I've read the long lists but wanted to find out what real world users have experienced so far if possible please ?

Many thanks Mo xx

latchbrook 4 months ago

Hi Mo/Selernie

I'm really sorry to read that you've recently lost your husband and now having to deal with your own cancer diagnosis must be very tough.

I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

Wishing you all the best

"Never regret a day in your life, good days give you happiness, bad days give you experience"

Calam 4 months ago

You sound like such a brave lady, my heart goes out to you

PSK 4 months ago

Hi Mo,

I had my first chemo last week and most annoying side effects I found are feeling sick, vomiting, no appetite, can’t keep anything down,pins and needles, muscle and joint pain, terrible fatigue and constipation. I got dehydrated and had to go to A&E for iv fluid and anti sickness. It does affect your mood as well and living alone makes it harder. I am hopeful my symptoms will get better as days go by and wish you the best with your treatment.

JackieL 4 months ago in reply to PSK

Just to reassure you, it does get better. I found that days 2 and 3 were fine (the steroid effect) then days 4 to 9 were harder, needing self TLC, lots of sofa time, light diet, paracetamol and gentle walks (they really do help even though you don’t feel like doing one). Then everything is normal from days 10 to 21 until the cycle started again.

VanvanVan 1 month ago

Hi, Mo. We're on similar paths.

I have 3c inoperable ovarian cancer. I've had chemo (only carboplatin as I appear to be allergic to paxlataxil)and I've just started on niraparib.

I have nothing to report after 2 weeks. But I suppose that's to be expected when my symptoms are basically most of the side effects list.

I'd advise a blood pressure monitor and a good digital thermometer.

I keep a notebook to record my symptoms along with my blood pressure and temperature.. I can't stress enough how important it is to monitor your blood pressure.

Please let me know what you decide, any side effects, questions, concerns - I'll help if I can

Van

Flossy2468 29 days ago in reply to VanvanVan

Hi Van

How are you finding the symptoms now? Have they calmed down or has your body just got used to them? My mum has recurrent ovarian 3C cancer, inoperable this time so starting on Niraparib in two weeks time and not feeling hopeful about all the side effects she will get.

Emma

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