New Here, Playing the Waiting Game

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Hello all, I am currently waiting and it is brutal..

After a long period of time (2 years!!) being dismissed by GP's I went private to a consultant for a trans-vaginal ultrasound where a "suspicious mass" was found on my right ovary. 

Long story short I am now in the wonderful NHS and have been told that they think I have a Granulosa Cell Tumour and are recommending everything comes out (Uterus, tubes, ovaries, cervix and Omentum) 

This is because of the location of the mass and the thickening of the lining of my womb (biopsy for this came back clear) which they believe is due to the oestrogen produced by the tumour.

Of course they cannot be sure until they remove it and send off for histology. 

My surgery is scheduled for the 25th. 

I am mostly trying to just get on with life until then but oh boy do I have some tough days..it is constantly at the back of my mind which is absolutely exhausting. I find myself sometimes worrying so much about the hysterectomy and surgical menopause then I stop myself and remember I haven't been worrying about the cancer. The waiting and not knowing is brutal. 

I talk to friends and family but I wanted to speak to people who understood, I know there is nothing that can make this easier but to be understood can mean a lot x

  • Hi , Aine 72 , I’m so sorry you find yourself here , you have come to the right place, I’ve found the online community really supportive . It’s completely understandable that you’re having a tough time. When I was told i had suspected ovarian cancer I was terrified and overwhelmed, and found waiting for results so difficult and my mind was on overdrive thinking the worst. I do now have a diagnosis and feel less scared and more positive having a treatment plan in place, so far 4  chemo and my surgery booked in for the 25th. I can relate to feeling nervous about the operation, I am post menopause so in a different circumstance. There is good online support here ,I’ve also found ovacome and target ovarian cancer helpful. Be kind to yourself and take care. Xx