Hoping I get some sort of plan soon !

Hi Northern lights. So sorry that you are in this scary place. I cannot offer you similar experience as my ovarian cancer was contained within my abdomen cavity and had affected the uterus and intestine, which have now been removed. However I can share what helped me, which was controlling the parts of this that I could control. For me this included making myself as fit as I could be ready for surgery and chemotherapy, planning activities that gave me (and my husband) pleasure, such as a holiday before treatment started, time with our friends and family and when it came to it arranging for my hairdresser to shave my head as the hair started to fall out rather than waiting. I also spent a lovely day with a good friend buying some pretty headscarves. If I was you g to be bald I wanted to do it in style ️. I also created a playlist of songs that I listened to on the way to appointments and just before surgery.

when life is beyond our control, we can focus simply on the elements that are within our control and it does help  

God Bless and I wish you well  

Thanks for your reply, yes definately need to control what you can. I was working in similar things , getting out with friends and get things done at home. Seeing my daughters and spending time with family. 
This news was just so out of the blue. It has really set me back, but I will try and reset my head and get out and enjoy the all the little things in life that we all take for granted. 
I am glad that you have got through your surgery and wish you well in your journey with such a positive outlook. 
Take care 

Good morning 

I too am so sorry to hear this news, it must have been such a shock and totally unexpected. I don't know how I would feel if I was told this. If they say they cant operate it seems like the final curtain. That is very hard to take. In my case, they will only operate on me if the chemo is working and shrinks my tumour but thats not a given as I have clear cell cancer which is chemo resistant so aleast they are trying You can request a second opinion.

Whatever you are feeling & thinking is normal. Is there a Macmillan centre near you? I went to one at my local hospital and I felt loved & safe there. Mine offer free therapies so Ive signed up for mindfulness and yoga to start with. 

I hope you do manage to connect with someone in s similar situation, even if its a different cancer, the feelings will be similar I am sure. 

We are here for you whatever so come back & chat any time  big hugs to you xx

Thanks, I just don’t know where I go with this . I think I need to wait and see what the Ovary biopsy finds . I did look online and it seems to be one where colon cancer goes to ovaries and has similar symptoms. 
I originally went to doctors with pain in my right side and they were investigating kidney stones or gall bladder. But Ovarian mass was found when I went for US .Just seems to be going on forever getting tests done. But getting that news that’s really thrown me. 
There is a Maggies centre but i live in the Scottish highlands and it’s a 100 mile round trip for me. Mind you I the hospital is there where i am getting treated, so i am used to the trip , weather dependant .
I do hope your chemo is successful and you get your surgery. Fingers crossed for you that it all goes well . 

Sending big hugs back 

I am not surprised it has thrown you. We are human after all. All you can do is wait but push for a biopsy quickly. Keep nagging them. Waiting is very hard, I felt very anxious waiting on mine. Do you have support where you live as it sounds pretty remote, beautiful though I'd imagine. Regardless of what we find on google, everybody will be different. It's hard to avoid looking though I know.

I use an app called CALM on my phone which is great for meditation, sleep, all sorts. I'm using it alot atm. Gentle exercise will always help, walking, yoga maybe. 

Maybe there is no where to go at this time, just more waiting & finding wats to keep your mind and body occupied meantime. 

I will be thinking of you and hoping you dont have to wait too long xx

Good evening 

I was thinking of you & wondering how things are going. Don't expect a reply however, only if youre ok to chat x

Hi there, sorry I only just saw this. I have been trying to keep busy. I have my biopsy next week, seems to be slow getting appointments even when they are urgent. I am in as a day case as they want to do other tests as well. Hopefully I don’t wait too long for results. 
I hope you are doing ok, have you started your treatment yet. Fingers crossed it goes well for you. You might get this message twice, not sure if I am using this right  

So pleased things are on the move, but the biopsy is taking time isn't it, then waiting for results. Can't control that unfortunately. 

I'm doing ok. Started chemo 2 Jan and had my second one yesterday. Not going to lie, side effects are bad, and I'm on so much medication. Im on 3 different types of strong chemo being Im stage 4 and they warned me it would be tough. My hair has gone now and getting used to all the changes. Its really a rollercoaster. Im blessed with huge support around me and feel mentally strong & positive. I wont be beaten. 

Hopefully my tumour will have shrunk enough for surgery after my next round  

Keep fighting in, one day at a time, & let me know how things go

Positive vibes & hugs  

Hi

Thats great that you have started your chemo, sounds pretty brutal but just stay strong and keep fighting. I hope it is working and you get your surgery . 
I am sending you lots of positive vibes for good results.

take care , big ((HUG)) x

Hi KazWaz, 

I hope you are getting on ok with your treatment. Just thought I would give you a wee update.   Biopsy done on ovarian mass and results were unusual. The type of cells they were are not ones they have seen before. But oncology doctor reassured me there was now bowel cancer. They think it’s a rarer type of ovarian/womb/peritoneum cancer. Trust me to be awkward! But as they are all treated with the same chemo  I am starting that ASAP. Finally feel like I am getting somewhere now . I can’t praise the drs and nurses enough and I actually feel better just knowing I am starting treatment in the next few weeks. 
isn’t it funny how when I was first told it was ovarian cancer I was devastated. Now being told it is ovarian I feeling like I have won the lottery. 

Apologies for the rant! I really hope you are getting on ok and keeping positive xx