Not diagnosed

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Hi everyone hope this is OK to post as I haven't been diagnosed but a little worried.

I'm 38 with 4 children about 7 years ago I had right ovary pain and had a scan which showed a small cyst they said it was just a normal cyst that would go away on its own. (I've just checked my notes from back then and it said I should of had a follow on scan 6 weeks later but I was never told this at the time. I went on to have my last child a year later and never really thought about it again.

Over the last 3/4 months I have been suffering with extreme fatigue I sleep about 10/11 hours at night and then will nap 3/4 hours through the day so much so I'm currently off sick as I don't have any energy.  Doctors did blood test (just normal full blood count/diabetes etc)  and that came back fine except slightly low creatine. So Doctors have put my tiredness down to depression. 

Over the last week or 2 I have starting weeing constantly I would say every half hour or so through the day and 3/4 times in the night and always a lot of wee I've also started leaking a little wee as well. I've got achy legs and an achy shoulder, I also keep getting the odd sharp pain in my right ovary but it goes after a couple of mins. I'm now suffering with bloating and last night was in agony with my stomach cramping like period type pains but it's ok today just a dull ache. 

My appetite has gone over the last week which is not like me cause even when I'm poorly I eat! And I'm feeling full after eating also feeling sick but never actually sick. 

I have no bleeding or discharge so I'm wondering if these symptoms are something serious or not as I would of thought i would have bleeding I cant get a doctors appointment until mid January and have booked a smear as I haven't had one for 13 years for the end of this month. 

Sorry for the long post and thank you for taking the time to read it. 

  • Hello J1985

    Welcome to the Online Community. It is absolutely fine to post here. 

    I am sorry to hear that you are having all these symptoms and I do understand your concerns. My feelings are that they do need checking and making the doctors appointment was the sensible thing to do. You say you can't get an appointment until mid January, which I feel is a long time to wait and worry. When did you actually ask for the appointment?

    I would be inclined to do an Online Consultation for your GP and would suggest something like this..............

    That you have consulted doctor before but symptoms have persisted and getting worse. 

    Previous ovarian cyst, getting sharp pains in right ovary. Can an ultrasound be done in case of infection, torsion etc?

    Extreme fatigue, depression may be part of it but you also have other symptoms that may be contributing to it.

    Frequent urination, leaking- worsened in last 2 weeks. Can you have a check for possible UTI? Do you need antibiotics/scan?

    Ask for repeat blood test and whether to include CA125 levels. (This is a gynae marker)

    Aching legs/aching shoulder

    Now have bloating

    Severe stomach cramping (comes and goes)

    Loss of appetite, feeling full, nausea

    I would be specifically asking the doctor Could my symptoms be a sign of ovarian cancer and can I be referred on the urgent 2 weeks pathway for it to be ruled out. With these symptoms a gynae check would be advisable. 

    I am not saying that I think your symptoms mean ovarian cancer, and there can in effect be lots of different reasons for these symptoms but my concern would be that they have become worse and more diverse over the last couple of weeks and you have bad pain last night- this needs checking. Something is causing these symptoms and the 2 week referral would likely mean scans could be done before Christmas and would give you hopefully some reassurance. 

    I am suggesting the online consultation because I find that I can precisely state my concerns and have them addressed one by one. However if you do get that pain again I would think calling them and asking for a more urgent appointment would be best. 

    If it would help to talk through your symptoms and concerns first then please do call the Support Line and speak with one of the nurses. The number is below. 

    Hope this helps a bit. And remember these symptoms can be caused by other things rather than cancer but it is always best to get any potentially more serious causes ruled out earlier. Definitely push to be seen before the mid Jan appointment. Hopefully by listing the symptoms above as I have done, they will get you seen more quickly. Online Consultations have worked really well in the past for me, as they are reviewed by the GP rather than calling and asking for an appointment from the receptionist. They do their best but it is hard to get the full picture to them to get an actual appointment. But any severe pain, worsening of any of these, then do contact them straight away.

    Good Luck and let us know how you get on

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Jane

    Thank you for taking the time to reply I booked the appointment yesterday for January the receptionist didn't seem to want to give me one at all! Not sure why they get to choose but since covid my surgery has gone down hill and they get to choose who sees a doctor. 

    How do I do an online consultation is it through the NHS app? 

    Thanks 

  • For me to do an online consultation- I log into the website for my own doctors surgery and there is a link. I just click on it and it is like a secure email. I normally hear back the same day or the following day. I am not sure about the NHS app. 

    The other thing you could try is to try to get to see one of the practice nurses/ or even call the surgery and ask for one to call you back. I have done that and it can help move things along. I think once you have your foot in the door, it will be taken seriously. Another option is going to an NHS walk in centre/ Minor injuries unit- if you are having an episode of pain etc. They would be able to do bloods/ urine tests etc and get you in the system if needed.

    I like the online consultations though as I always know it will be seen by a GP

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • I rung again this morning to try get another appointment as my stomach cramps were so bad through the night again number 1 in the que still wouldn't give me an appointment. Instead sent me a questionnaire to fill in to decide if I need one. Hopefully they will give me one as I'm fed up with this. 

  • Sorry to hear that you have had stomach cramps again during the night and I can understand why you are getting fed up. I would consider going to an NHS walk in centre myself- if I was unable to get in to see the GP. I have been myself a couple of times and am normally seen within the hour.

    However if the pain started up again during the night- I myself would call NHS111 at the time and follow their advice.

    I will pop a couple of links

    When to visit an urgent treatment centre (walk-in centre or minor injury unit) - NHS (www.nhs.uk)  Stomach pain is mentioned as a reason to attend.

    Find urgent treatment centres - NHS (www.nhs.uk)  If you put your post code in it will tell you the nearest and you can always phone them direct or NHS111 first

    I hope that you can be seen. Let us know how you get on.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Jane

    So the doctor didn't ring or anything just prescribed antibiotics for suspected uti and told me bring in a wee sample when I pick the prescription up. The wee is showing  blood and something called leucocyte so think they are treating it as a uti. I still feel awful so think if I get any worse I will go to the walk in center. Thanks for your help x

  • UTI's can be very painful and make you feel really unwell. I ended up in hospital with one during chemo. I found the antibiotic I was given made a big difference within 24hours. 

    Blood and leucocytes are indeed signs of an infection. Yes, if you still feel awful and/or get any worse- do call NHS111 or go to a walk in centre. I was told that any worsening of symptoms, to contact the hospital again as sometimes the infection can go to your kidneys. 

    I hope that you are feeling a lot better soon

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hello - sorry to hear you've been having such a difficult time and especially that it appears you are struggling to access a GP appointment.   My OC symptoms were very vague - for ages.  I put it down to the menopause - tiredness, bloating and feeling full very quickly after eating.  I noticed my tummy swelling but thought it was just me putting on weight!   Then I started with tummy pains and put that down to a virus.   Fortunately, my GP had me in for an appointment that day (the first appt was via phone) and she felt the mass in my abdomen.   I think what I am trying to say is - the symptoms can be so vague that they can be one thing or another but as Jane says - ruling out OC might be a safe option given some of the symptoms you describe.    Good luck.

  • Thanks I ended up paying for a private ca125 blood test just waiting on the results of that hopefully tomorrow. Still having pains etc so not convinced it's just a uti..

  • Just to update ca125 came back at 34 so normal range. X