Hello from a new 2 wk wait journey starter

  • 2 replies
  • 60 subscribers
  • 428 views

Hello, last week (Mon) I visited my GP, I thought I was fast approaching menopause and was starting to worry about the new draft NICE guidance for menopause so wanted to get in there early for potential HRT. However it back on mind due to significant family history I was worried about a cyst of some kind.

Have a full house so to speak on symptoms, on a positive now CA 125 is within range (I am away it's not always deranged for some)

Long story short, I have a 10cm cyst on my left ovary and fluid in abdomen. I was referred on the 2 week wait gynaecology cancer pathway for further investigation 

Saw the Gynaecologist today, I am pending further imaging to inform surgerical options.

In the past 2 wks I've feel my general health has declined.  I have no appetite,  when I eat I feel full, get stomach acid/heart burn,  tummy pains and Constipation.  I have lost weight in past month.

I decided to go off work (a nurse myself) but feeling guilty,  feel like I have no right at present. But although symptoms present,  with poor sleep and diet I feel like I have no energy to do my challenging job

Apologies for any spelling etc issues, I have dyslexia. 

  • Hello AL80

    Welcome to the Online Community. I am sorry to hear that you are having symptoms that are worrying you but you have done the right thing in getting these checked out. You should not feel guilty for being off work and we all sometimes need to prioritise our own health. I always think it is better to be off for a while to get things sorted rather than go in and to try to work when I am not up to it. 

    I am sorry that a cyst was found and that you have some fluid in your abdomen but it is good that you have seen the gynaecologist and that further scans have been arranged. I hope these will be done quickly and that you can get some answers to what is going on. Going through tests and waiting for the results and a diagnosis is always stressful and I think you are right to stay off work- you need to focus on you before you can go back as a nurse to help others. 

    I am sorry that your health has declined in the last couple of weeks. I wonder if there may possibly be an element of the worry playing a part. I also lost my appetite and had tummy problems whilst getting diagnosed and the nurses at the time felt a lot of it was anxiety. I think they were partly right in that once I had a firm diagnosis and knew what the plan was for treatment, I did on the whole feel a lot better. 

    I know that you are medically qualified and will know far more than me, but I did at times find talking things through would help. If you think it would help you then I can recommend the Support Line or Macmillan online chat. Sometimes just talking about it or writing it down does help.

    I hope your scans are done quickly and that you find out your surgery/treatment options quickly. 

    Good Luck and let us know how you get on.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thanks for taking the time to reply Jane. I think your right re the anxiety making symptoms worse, our mind and bodies do strange things to us when we are faced with such stressor. I will think about your advise to talk for sure, I just feel a bit of a fraud at present, but I know I won't be treated like one. I think the fear of unknown is the hardest 

    I'm taking this time to get my house in order a little at a time, as surgery was discussed at last consultation so I want everything in hand to make things easier.

    Thanks again for your support and care

    Al