Newly diagnosed

  • 3 replies
  • 60 subscribers
  • 499 views

Hi, I recently had a large cyst, 30 x 25.5 x 19 cms, removed, along with my remaining ovary, omentum and 2 lots of lymph nodes. The results came back last week as stage 1c ovarian mucinous cancer. I have seen the oncologist and she explained that she needs more information about how the cancer was growing before deciding if chemo was needed. She said she and her team needed to weigh up the risk of cancer returning against the effects of cancer. I don't know if I have any choice in this, does anyone have any views or experiences of this? My cyst did burst during removal, does this make a difference? I am almost 66 years old. I feel very well and am recovering very well from the operation, and feel positive, but this is worrying me a bit. Thanks. Windbag

  • Hi Windbag welcome to the  forum and I am sorry that you have not had a reply as yet. I sadly dont know the answer to your query but by replying to your post it puts it out onto the thread and hopefully some of the lovely folks on there will be able to help. Best wishes for now xx

    gail

     
    Community Champion Badge

  • Thank you so much xxx

  • Hello Windbag - so sorry to hear about your diagnosis.   Such a terrible shock I would imagine - it certainly was for me.   I have the same diagnosis in that I am mucinous ovarian cancer lc.  My tumour ruptured prior to surgery.   I was diagnosed February 2023 and underwent radical surgery March 2023.  I had 6 rounds of carboplatin after my surgery.   I think if it hadn't ruptured - they don't usually offer chemo.   But if it does - I think the phrase is 'belts and braces' approach to it.   I was also advised that this type of cancer responds poorly to chemo but there is not enough research that has been done to be very clear that it works or doesn't.   I am on a couple of forums and a few ladies I have spoken with - who have this diagnosis have either opted or not opted for chemo.  So I don't think there is a hard and fast rule about it.   

    One lady wrote that if she didn't feel she had given herself the best shot of survival (i.e. have the chemo), she couldn't look her children in the eyes if it came back - and that really stuck with me.   I am 63, so in your age group but I feel that way as well.   I want to give myself the best possible chance and if my Dr wants to offer chemo to me, I will take it.    But chemo is a tough old road in itself and there are pros and cons to that.   The best thing is to discuss this with your oncologist and see what their thoughts are - they have usually discussed things extensively and looked at your histology - they are best placed to know what options to put in front of you but it will always be your final decision about your treatment. x