Hello

Hi Soccermum7 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

It's natural to be worried at the thought of starting chemotherapy but I personally found that it wasn't nearly as scary as I imagined when I had it last year to treat breast cancer.

The nurses in the chemo ward are very empathetic and in my experience nothing is too much trouble for them. I don't know how long you'll be there for but I used to take a book to read along with a puzzle book. Some people took iPads in so they could watch a film. At my hospital they came round with tea, coffee, chocolate biscuits, etc so I didn't take anything like that in with me.

It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Wishing you all the best

x

Hi

sorry that you are facing this diagnosis, it’s very scary.

Just wanted to say that I was terrified of what chemo would have me feeling like but to be honest it wasn’t as bad as I had in my head. It’s no walk in the park but generally I had 2/3 pretty bad days then you start picking up. Ob by the time your getting to number 6 it takes more out of you but hopefully it will all be worth it for you

Good luck

x

Do you know what chemo you're being given? Ive just had my 3rd of 6 treatments. I'm on paclitaxel and carboplatin. For me it was the unknown that was scary but once I'd had Mt 1st treatment I then knew what to expect. I have lost my hair, I didn't try cold capping as i decided it wasn't for me. After my 1st treatment I was fine for a few days but was hit with nausea, leg pain and fatigue on around day 5 and this went on until around day 10 . The anti emetics they gave me didn't work so i told my oncologist and she changed my meds which helped a lot. I still feel nauseous but it's much more controlled. I'm still in bed for around 3 days with debilitating fatigue but I recovered faster last time. Ask away if you have any questions 

Hiya I’m on carboplatin. I’ve had 1st cycle and had a few days of extreme fatigue and leg pain. I’m also not sleeping but I don’t know if that’s due to having my hysterectomy 6 weeks ago and could be symptom of surgical menopause 

Well the good news is you don't lose your hair on carboplatin if you're having trouble sleeping speak to your GP and get some sleeping tablets. I find the steroids keep me awake when I'm on them for the few days after chemo. Yes the fatigue is hard to explain just how bad it is until you experience it. I get leg pain too but find taking paracetamol regularly does help with that.  Good luck with your treatment.x

Hi ladies

I'm on carboplatin and paclitaxel had 1 cycle 3rd June and have started losing my hair already, last time I was on 3rd cycle before it started to fall, I get my chemo at 60% it's not even full strength, last time I had it at 80%

I go to Cyprus in a couple of weeks and I don't think I will have any hair left by then I'm totally gutted

People say ah will grow back.. I want to slap them in the face,  it infuriates me does comfort me one bit

Good luck with your treatments ladies 

Pam xx

Hi Pam

I lost mine by the 2nd chemo on the same mix so didn’t do as well as you the first time. Hope you keep enough hair to keep you happy for your hols, so will you get your second before it or after? X

Had bloods done today so hoping they're 1.5 chemo wed if the bloods are high as 2 chemo will go up to 80%

If not Dr will ring with plan b

All our oncology consultants have left so not sure what's going to happen to us and who will make the decisions

Pam xx

Goodness that doesn’t sound good!!!!! Fingers crossed everything goes to plan x

Haven't had a call so I'm presuming good to go for tmora xx