Hi Everyone
I'm new here and just wanted to introduce myself. I am a fun-loving 55 year old, with an amazing partner and two beautiful daughters and now, just three months ago, became grandmother to a gorgeous little boy.
I was diagnosed with stage 3 metastatic high grade serous carcinoma - wide spread peritoneal disease in August 2021. Started neoadjuvant chemotherapy (carboplatin and paclitaxel) in September 2021. Developed an aortic thromus in October 2021 and then developed a 10cm clot in my right femoral artery in October 21 so had to have an embolectomy in November 2021. Finished chemo in December 2021 after six cycles and then had surgery (full hysterectomy) in January 2022. Commenced maintenance treatment, Niraparib in February 2022 with little to no side effects - taking 200mg once a day. Then in June 2022 I had a recurrence of two masses in my pelvic area so had more surgery in August 2022 and now six months into that recovery. Had to have a stoma (colostomy) because the surgical team removed 15cm of my large intestine and this will probably be permanent but not sure 100%.
I've had great support from my amazing partner and daughters and I'm now just trying to get my life on track but finding it more difficult than after the first diagnosis. I think the recurrence has really knocked me down.
I'm here for some support and just to hear from others who may understand how I feel and what I've been through.
Sending much love to you all out there...
Lulug75 xx
What a sweet name from your grand daughter! We have a dedicated support group for cervical cancer and I wonder if you’d like to join us there?
If you click on this link I’ve made it will take you directly there-
You could then put a post up using the “new”button and introduce yourself. We have a lot of experience of the various treatments for cervical cancer, and we all understand how horrible it is to be waiting for the results of tests and scans.
There’s lots of support for you as you go through this, and we’d be very happy for you to join us to help you with anything we can. Treatment for cervical cancer will not be the same as for ovarian cancer, so while of course you are welcome to join any group you just need to be aware that every cancer has different treatment protocols.
I hope to see you with us!
Sarah xx
Hi again Lulug75
I tend to dot around various groups based on my cancer and surgery, and in addition to this group I’d like to point you in the direction of our dedicated stoma support group, where there are lots of hints and tips on living with a stoma. As your stoma is relatively new, you may find this useful, and of course you can ask any questions you need to. Thislink will take you there
You have done amazingly well to be travelling again, and I’m so glad you had a good experience at the airport today!
Sarah xx
