Newbie, Ovarian 4B & advice

Hi Beglad2 

I hope you don’t mind me responding as I didn’t have ovarian cancer, but recurrent cervical cancer. I did however have a total pelvic exenteration almost 3 years ago which resulted in 2 stomas-a urostomy and colostomy and the loss of my complete reproductive system amongst other things! You can read my story if you click on my name. I wondered if you felt able to share why you are so against having any form of stoma? Mine have saved my life so I am forever grateful for them. Obviously you don’t need to answer if this is too personal, but I have never regretted my surgery which successfully removed all my cancer. 

Whatever you decide on is a very personal choice of course, and I wish you well with coming to that difficult decision.

Sarah xx

Hi Sarah Can I send you a message personally?  

Oh absolutely-please feel free to message me.

Sarah xx

How do I send it is only to you?

I have sent you a friendship request so you should receive a notification, top right of the screen. Click on the request to accept and then you can message me.

Sarah xx

There is a message symbol next to the notification symbol-click on that to type you message, putting me as the recipient. That means it will only go to me and not appear on the forum.

Sarah xx

Hi Beglad2,

I hope this is going to you, as I find this site hard to use and kept sending messages to the wrong people (duh), so have not tried for a good few months. Anyway, cross fingers.

I was diagnosed in June with stage 3C ovarian cancer, which had spread to my stomach (I am 61 by the way). I have just completed my final (6th) chemo cycle for the moment and had a debulking op after 4 cycles. Despite a lot of pain and difficulty caused by the cancer lying on my bowel, once they opened me up, there was no cancer remaining there, so no need for the stoma I was expecting. I understand your concerns and making decisions can be difficult, but am greatly relieved to know that for the moment there is no visible cancer remaining. I also had a full hysterectomy along with removal of fallopian tubes, cervix and omentum, but would have had the stoma etc if necessary, as I know many people with stomas who lead full and active lives.

However, we are all different and deal with the disease and treatments differently along with leading different lives etc, so I hope that your surgeon and oncologist will give you all the advice you need and answer your questions for you to make an informed decision. I turned up with a list as long as my arm. Lol. At the end of the day, it is your life and your decision to make, regardless of what anyone thinks or says and I pray that you will be guided to make the right one for you.

I hope that I have not spoken out of turn and wish you the very best, whatever decision you make.

Kind regards and hugs

Kaye (Fatface)  xx