My mum is awaiting a diagnosis

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I found out yesterday that my mum has a mass in her omentum and her CA125 level is over 400. The doctors suspect this could be secondary to ovarian cancer and I am worried sick. From research online I’ve found stories that say this would mean that it is advanced and prognosis is poor. She has to go into hospital on Friday for biopsies and then we will wait for 1/2 weeks for results. I am petrified and wondered if it would help to speak to people that have went through similar situations? Can there be a light at the end of the tunnel? Any advice would be really appreciated right now. I feel like my world has fallen apart.

  • Hi so sorry to hear about your mum, I agree it's a very frightening time and a lot of terminology is used which is unfamiliar. I was diagnosed in February with stage 4 grade 4 ovarian cancer which had also spread to the omentum. My brain went into overdrive and I thought the worse would happen. My CA125 was showing as 14073 and I had no idea how bad that was, I can tell you it's been a huge learning curve. But the good news is I got chemo treatment and surgery which was a full hysterectomy and removal of the omentum. The 1st 3 chemo treatments worked amazingly well and reduced most of the tumour on the omentum. My CA 125 also reduced to 265. So I would say there is hope and treatments available are incredible, there has been huge progress in terms of types of chemo or other meds and surgery. I know that we all have a very different experience with cancer with some having more success than others.

    1. Definitely best to speak to your mum's oncologist and go along to the clinics with her as it's a lot to take in and having someone there can be very helpful. Macmillan website also has a huge amount of information as do their info points within libraries and so on where you can have a chat with volunteers.

    I know you are petrified and your mum will be too, but it's great that she has you by her side as she begins a challenging road ahead.

    I wish you and your mum well and keeping everything crossed that the right treatment will be available and that you'll both get through this.

    Best wishes

    L

  • Hi,

    thank you so much for your reply, it has been so reassuring to hear how well you are doing and it gives me hope that there are things that can be done. 

    Take care and best wishes,

    K