Hello

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Hi everyone, my name is olivia and last week I received the news I have ovarian cancer. I am 26, no kids and I’m not sure the news has fully set in yet. I went into hospital at the beginning of the year with shoulder pain and still have no clue what caused it. However, it turned out to be the reason this was caught. I had a ct scan which showed a mass on my left ovary and had ca125 blood results of 3370. I left the hospital 3 days later with leaflets on ovarian cancer and told there was a chance that’s what it was. A few weeks later I had my pre op assessment and was relieved when the consultant said they had reviewed the scans and were confident that it wasn’t cancer. Just over a week later I had an operation to remove the mass, my left ovary and tube. I returned to work 3 weeks later thinking this was all behind me. 2 days after returning to work I had an appointment at the hospital to discuss my results. They said it is stage 1 Endometriod ovarian cancer. They now want to do another surgery to remove the omentum, take biopsies of the lymph nodes and have a look at the other ovary. 

i guess my main reason for posting on here is that I have absolutely no idea what I should be feeling and/or doing. I feel so lost and scared about what is ahead of me. I find it hard to talk about things with people close to me so avoid bringing up the conversation. I’m continuing to work at the minute to avoid sitting at home and stressing myself out by overthinking everything. I think I am more confused by what I’m being told at the hospital with them saying it is cancer then saying it’s not, and then being told it is. 

I am after some advice on how to fully accept this and how to reach out for some support. Thank you in advance if you take the time to reply, it is much appreciated 

  • Hello, so sorry that you find yourself here. 

    I think we all feel worried, anxious until we actually hear our diagnosis and that is perfectly normal.  I just took it one day at at time. 

    Perhaps reach out to your Macmillan nurse for help?  Or the contact numbers you have been provided with so far?   

    It would also be helpful if you could kindly update your profile so that we know where you are at with your journey and diagnosis and we can provide you with better support.  

    Sending virtual hugs xx  

  • Hi I have just read your post and wanted to support you as I can understand how you feel. I would contact your CNS nurses and get them on board as in my experience they can help you most and communicate any of your issues to the Consultant and he / she should give you some confidence by being clear with you. Get a trusted friend to be with you .
    I was much older than you when I was diagnosed at 58 - mine had been diagnosed as IBS and to be brief it was stage 3 OC which moved to stage 4 - however post chemo and surgery which was called extreme - I am still here nearly 6 years later and getting on with life.

    You are young and fit which will be a great help and insist they give you a plan of treatment / action. 
    macmillan can help you.

    I was terrified when I was diagnosed as it was a complete shock - but I met ladies who were through treatment and it helped me stop reeling. You will come through - easy for me to say now but really you will do. Get your CNS nurses on side - that should be first base and hopefully will steady you.

    Good luck and try and take it in your stride - you will get it sorted .

    All the very best