So many questions

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Hi. I have so many questions and just don’t know where to start. My journey so far is that I’ve had an ultrasound and a CA125 blood test and my Dr has now sent an urgent referral through to the hospital. 
my questions are: 

what happens next

do I tell my family just now

my symptoms have escalated over the last few days, do I need to contact my Dr again to let her know? Or is this just normal 

many help would be much appreciated 

thank you

  • So sorry to find yourself here, all I can say is the support is amazing. I am (43) and have Stage 4 Serious OC. When I first got my CA125 test back (July 21) I told my sister as I was understandibly upset. After the ultrasound I knew something was seriously wrong , I told my 5 best friends through a Watsapp group as I wanted the information to be the same and I didn't want my kids to find out , only telling 5 allowed me to control the situation. Once I was properly diagnosed, I told my kids and then I was very open and told EVERYONE I found it so much easier having that support. 

    It's v personal, hut I felt telling family first really helped me through the process . 

    Wishing you so much love.

  • Thank you for your reply, it means so much. I’ve told a couple of friends but I really want to speak to my daughter but then feel that it’s not fair to worry her. She is 40 and I’m sure she’ll be fine with it but is it fair on her, maybe I should wait until I have more information?

    xxx

  • WHAT happens next ? For me I had an MRI scan with contrast , after that a CT scan with contrast , after that things moved fairly quickly , I had surgery on 9/08/21. 

    I then started 3 weekly chemo on the 15/09 , I'm now half way and my CA125 has dropped from 291 to 43. So chemo is working. 

  • Personally (as a daughter) I'd want to know , my children are 8 and 11 so I definitely needed more information. Let your daughter support you , it's honestly a mind-blowing numbing time. 

  • Your so young, I’m glad to hear your treatment is working. Crikey how did we get hear!

    xxx

  • Big sigh , it's unfair isn't it ! I'm healthy, eat well and just for fun have 2 different types of breast cancer .... Mastectomy in Feb... 

  • Jeez Lass, that’s a lot to cope with, I hope you have lots of support around you. 
    sending Love your way xx

  • Loads of love and support thank you. I'm half way through my frontline chemo and so far there's NED (no evidence of disease)