Shock diagnosis

FormerMember
FormerMember
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Hi,

So I am 39 and in shock. I took myself to the hospital about 4 weeks ago because I was bloated and had terrible abdominal pain (out of nowhere). Spent a lot of time trying to convince the surgeons in A&E that it wasn't just 'constipation' and was finally given a CT scan (knew it wasn't constipation Joy). The scan showed a 21cm by 12cm tumour across my abdomen and they decided to do emergency surgery that night. I woke to find that they had done a full hysterectomy, removed my appendix and I had to have two blood transfusions both in and out of theatre. I have since found out that I have cancer and now require a second operation (to get some other stuff out) and Chemo (no time frame yet). Typically for me my tumour is rare Face palm and the cancer was found in my left ovary and Appendix. So four weeks on and it has now been sent to different hospitals for further investigation.

I have two children and am already a widow. What is crazy is that I felt fine, I had a bit of bloating (thought I was starting with IBS or something) and then serious pain on the day I went to A&E. To go from being pretty OK to stage 3 in a matter weeks is just mind blowing. 

Sorry, probably ranted there but needed to get that out of my head. Chez :) x

  • Hi and welcome to the Online Community. I'm sorry to read your bloating and abdominal pain needed such drastic action. It is a massive shock to get a cancer diagnosis such as this totally out of the blue when you're feeling relatively fine. I have a different type of cancer but being post menopausal mentioned to my bestie I'd had a few pink spots on my undies over a couple of days and wasn't going to bother my GP (smack bang in the middle of lockdown)- she nagged me to get it checked out and it transpired I was harbouring an aggressive cancer without having a clue it was there. 

    By joining this group you’ve come to the right place to talk to other people who are in the same situation and help you get through this. The ladies here will be along to chat and offer support. In the meantime read some of the threads here and just click on reply to those you'd like to chat to.

    It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time. 

    To find more information covering diagnosis and treatments there are pages covering most types of cancers which can be found on our Online Information and Support Section

    The Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.

    Sending you welcoming hugs B xx


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  • FormerMember
    FormerMember in reply to MrsBJH

    Thank you for your reply that's very helpful and I hope that you are feeling okay. 

    Chez x

  • FormerMember
    FormerMember

    Hi, just got my official diagnosis today, after waiting 28 days since unofficial heads up.

    Stage 3 grade 3c

    I start chemo on Thursday (26th)

    Like you, I really had to beg to get seen, and I also have the rare form - carcinosarcoma.

    Fingers crossed for us both - reach out if you want a rant! Upside down

  • Hi  so sorry to read what a horrible birthday present you received today. I'm sending gentle hugs to you. It seems Hospital Trusts act so differently, with some you virtually have to drag them to make a diagnosis. I was fortunate, I didn't suspect anything was wrong and they presented it to me on a plate.

    The good thing is you and  are making this journey together so you'll be able to support each other in addition to getting support from the ladies here.

    Hope the Chemo goes well next week.

    Sending hugs, B xx

    PS I celebrated my Ruby wedding anniversary having a hysteroscopy - not my idea of a celebration!


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • FormerMember
    FormerMember in reply to FormerMember

    Hi,

    It all feels very crazy doesn't it? I still don't have a treatment plan (4 weeks in) as my stuff was sent to another hospital and they are still looking at it. I think the rough plan is second operation followed by Chemo but nothing official. 

    I hope all goes well on Thursday. Please let me know how you do and likewise if you need to rant Slight smile

    Cx

  • FormerMember
    FormerMember in reply to FormerMember

    Hope all went as well as it could today  x