New need advice please x

FormerMember
FormerMember
  • 3 replies
  • 68 subscribers
  • 840 views

I've had my ct and scan results yesterday. After they found ca125 in my blood elevated. They told me they are almost positive its ovarian cancer. I've got to have full hysterectomy with all bits removed and fatty layer in 6-8weeks. Is this classed as a diagnosis as I have 2-3 cm tumors on each ovary. My partner is saying it's not a diagnosis x

  • Hi Chatterbox,

    Sorry you find yourself here - but sounds like if you do have OC your medical team are on the case.

    What you have is as close to a diagnosis as  most of us get pre- surgery/biopsy I think. Generally, only when the surgery/biopsy has happened can they be 100% certain whether it is cancer or not and whether chemo or any other treatments are needed.

    Best of luck on your journey, and try not to argue with your partner over this. It’ll really help if you can support each other and be on the same side for this fight,

    love Bx

  • Hi Chatterbox,

    With me after a Ultrasound, CT scan and an MRI scan, I was “ diagnosed” with a pelvic mass 17 x 9 cm, they didn’t know if there were cancer cells in there.... but it certainly had to come out....I had complete faith in my medical team and agreed to a full hysterectomy with omentum....it was 8 weeks between first appt to operation.

    After the op, it was 2 week wait, for the histology results, which were Grade 1C ovarian cancer, standard belt and braces approach of 6 rounds of chemotherapy followed, which I’ve just finished.

    So I would say that may be the best diagnosis they can give you at this point. 

    You will have a pre op assessment and probably another appt with your surgeon so get a diary/ notebook and start writing down your questions.

    Your first task is to get yourself ready for your hysterectomy, lots of information on this here but also in the womb cancer section.... lots of ladies have documented helpful hints and tips for getting through the next few weeks and coping with the operation ....  you may feel a tsunami of emotions, someone described it as constantly spinning.... you will need time to process all the information yourself before you take on anybody else’s feelings, that is what you can control.... so take your time and when you need someone to hold your hand (virtually of course) I’ve found there are wonderful ladies on here always ready to help...

    Good luck 

    Sue x

  • FormerMember
    FormerMember in reply to Becalm

    Thankyou hun. Just been such a whirlwind the last 3 weeks. Have not stopped worrying at least I now know and are prepared for what's to come. Thankyou for your advice xx