New diagnosis

  • 9 replies
  • 70 subscribers
  • 1551 views

Just found out yesterday I have large ovarian tumor. Ct scan on Monday next week but due to Easter holidays the multidisciplinary board won't discuss my case until 9th April and consultant will see me following Monday.just so stress as I thought it was a fibroid so mri scan result floored me. Told family and close friends but can't cope with their grief aswell at the moment.staying off Google but so scared.

  • Good morning Waggie. I’d like to say something to lift your spirits but having read your comments I’m taken back 27 years when my dear wife went through the same experience. Our GP had diagnosed fibroids  and referred us to a consultant. However the diagnosis was wrong and resulted in a 4 month delay before a laparotomy identified a metastatic ovarian tumour. This was devastating news and left us bewildered and fearful. The fact that you have had the condition identified and referred is a positive thing and with the advance in techniques and understanding today I send my best wishes for good progress . Kindest regards, John.

  • Thank you. I havent had a biopsy yet but all things are pointing to a cancer. Delays seeing gynaecologist oncologist are because of Easter not helpful and adding to stress. I feel so well and no symptoms of this disease so really stressed with what lies ahead

    Will try to keep occupied but difficult in lock down. Will post again when I know more on the 10th of April. Again thank you for your thoughts and support it's good to offload

  • It’s pleasing that you have taken a positive attitude. It’s also good that you are feeling well without symptoms . Waiting for results is an occupational hazard on this site as you’ll find everybody says. Patience and hugs usually are the best course of action, John.

  • Hi Waggie,

    So sorry you find yourself here, but welcome to the group and I hope you’ll find some support and strength from others here.

    I know in my case those early days of diagnosis, while still waiting for a plan, were among the hardest - so many questions to be answered and emotions to be processed, and this thing just comes crashing into your life without warning! Although I won’t pretend that surgery and chemo weren’t also scary, I was at least able to see them as steps along a path leading somewhere - and to take one step at a time along that path. I hope it will be like that for you too

    It’s good that you’ve been able to talk to your family and close friends but, as you say, they will have feelings of their own to come to terms with. You may also find that they feel the need to tell you everything will be ok - and sometimes that will be what you need, other times, not. So the Macmillan nurses can also be an amazing source of support and advice at those times - and you are 100% right to stay away from Google, which at best is out of date and at worst, completely misleading. There are so many new treatments becoming available all the time, that even when the news we get fills us with dread it’s so important to keep faith with what our medical teams advise to get us through.

    Wishing you all the best for your upcoming scan and appointment, and it would be great to hear from you again whenever you feel like posting.

    Much love

    Bx

  • Thank you for your reasurring words. Just frustrating that Easter is holding everything up. I do feel well and although stress makes eating very hard I am trying to eat little and often. Up to last week I was eating well and no problems. Just feel nauseous due to stress nothing else. Keeping active and surprisingly sleeping OK. Not tired during the day just bored with lockdown so making myself go for walks and pottering in garden weather permitting

    Evenings worst time can't switch off.I will keep in touch as it is good to know someone can empathise not sympathise. 

  • Hi Waggie,

    Yes, it would be great to keep in touch Slight smile. Meanwhile, sounds like you’re doing all the right things - can’t emphasise enough what a big contribution eating whatever and whenever you fancy, keeping active, and generally being the strongest and most positive “you” you can be, has on your ability to deal with treatments and recovery on this journey.

    All the best, and hope you find some nice things to do to fill up your Easter break and make it go by faster.

    Love

    Bx

  • Thank you Trying to eat and exercise. Spoke to macmillon support they are sending me info on mindfulness to help me de stress and stay focused.Have a good Easter

    X

  • FormerMember
    FormerMember

    Hi Waggie, As B.positive said, I’m so sorry you’re going through this, but you’ve come to a good place for support and sharing. Those first few weeks were definitely the most frustrating for me - being told it was cancer but having to wait to get a treatment plan in place and then start the treatment. At the time they felt like forever, but looking back it was just a month from the fateful GP visit to starting chemo. 
    You will get through this time - definitely stay off Google, and get as much help and support as you can from those around you and us here. X

  • Thank you. Just scared of what the delay is causing. will be five weeks from Gp and seeing Gynocologist. Had Mri with in days but then transfered to gynaecologist oncologist. CT scan on Monday then two week to discover treatment plan. Only 5weeks in all but seems like a lifetime and worry the cancer getting worse all the time.trying to stay positive.x