Tubular Ovarian Cancer at 43

Oh my lovely, 

I am so sorry to hear both how you've been treated and how little support you have seemed to receive. 

There isn't a really a question to ask and I think maybe you are reaching out for some reassurance? 

My Husband too has felt all the frustration and anger I feel like you are explaining here, thank goodness your partner was strong enough to advocate for herself and keep push for a diagnosis and hopefully the surgeon will be able to explain clearly why things didn't proceed and give you a clear plan of action. 

Ovarian Cancer is a total &?$@ and anyone reading your message will understand 100% your fear and frustration. 

Just know you are not alone the community and Macmillian will support you both as best they can. 

Sending loads of love and hope your way. 

The best you can do right now is be there, and you are doing that. 

T x

Hello I have replied to your more recent post (didn't see this one till I had posted). 

Hi there, I sense the raw anguish of the situation you and your partner are going through and your love. Keep strong together, as my partner and I say to each other 'it's you and me against the world'. X

Hello there !

   I have been thinking about your post all over Easter and I feel for you ...because anyone of us could be in your positions .

       To be so optimistically influenced on towards  surgery and then for that to happen is of great concern ..how could it not be 

          People in the medical arena have almost mocked me when I have voiced this and is it possible maybe to understand  further why this occurred if that is not too personal towards youboth....and to maybe learn of some alternative for her

         I have thought about your post all weekend as I explained earlier because I wanted to reach out towards you both as I resonate there is a chance of this with everyone and  you need to know others feel for you as well as themselves . 

          Ive known this from day 1 can occurred  but have been told I am overthinking....well I dont think I am 

         Hugs and sending love are all well and good as far as comfort go I know but alternative options and some kind of  reassurance is to be way above that in  terms of paramount necessity too.

         I was told its not me and I replied no its this lady in this case ....I couldnt just read your post and not reach out  to you both .

          You are in my thoughts! 

The last week has been a whirlwind of emotions, for my partner and myself to a certain extent. From the high of us pinning a great chunk of hope on surgery to being crestfallen the day after, although we did reach out to Professor Fotopoulou, who said after my partners recovery from surgery, then after another few rounds of chemo, then she would look at her results and if she can help she will.

This is obviously great news and offers hope of further surgery not being ruled out, so to this group/forum I can’t be grateful enough as I found out about her on this.

My partner has such amazing inner strength, and is fighting this head on, and is looking at every avenue possible.

So just over a week on we are in a better place, it’s been difficult mentally, physically and emotionally but she’s home where we can concentrate on her recovery.

thabk you all for your support

Glad to hear you are in a slightly better place. Keep strong x

How are you both today !

       I have learned that this planning of surgery and actual surgery taking place is quite common and its in the plan as standard criteria  procedure as well  as standard quite often unbeknown to the patient also highly likely  not taking place too.

    They aim for it shall we say !

          I have also realised that treatable and curable are two entirely different aspects .!

          Theres a massive difference !

        Your initial post was the reason I questioned a few facts further and researched and although were all individual cases ...we are all simular cases also .

            The surgery is not and never will be a guarantee now I realise .

            I also asked about aborting surgery even if opened ....and realised only when you ask do you realise this negative side that yes.... this does happen !

             We are all individual cases again I agree ....but we've all got the same chance of the same happening to any one of us .

            Thats why even with hope still active and all these individual cases  .....we must all truly resonate with  a simular status quo possibility in all of this ....I know I certainly did 

           Although I am id say a realistical optimist 

     I think knowing and truly  being  fully aware is very important also .to maybe create more determination .

           Different NHS hospitals work in different ways and youd like to hope that another surgeon or a second opinion is valuable and I truly hope that this alternative avenue may be for you !

I am only at the start of my cancer journey so am not claiming any expert knowledge at all but have read that places like the Royal Marsden can also offer expert second opinions for complex cases. There are also a number of clinical trials some of which are experimenting with different treatment options for complex cases. 

Hi, thanks for the reply, the last few days have been ones full of emotion, and various ups and downs for my partner which is heartbreaking to watch.

she has started on an alkaline diet, (in my opinion) she needs to concentrate on getting her strength up and being in best physical shape for chemo, which is due in the next couple of weeks.

Im remaining optimistic that the second opinion will help, and offer options as to how she moves forward.

again thanks for asking 

Hi Paws, 

We’re gonna look at all options and be open minded to anything offered to us going forward