Tubular Ovarian Cancer at 43

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Hi, apologies i don’t really know where to start, my partner (who is 43) was diagnosed with the above cancer back in September after months and months and months of being fobbed off by her Gp and Dr’s at our local hospital. The diagnosis time and time again was either peri menopausal or menopausal, when she basically shouted from the rooftops that she knew her own body and new there was an underlying issue.

Anyway she started chemo in October had 5 rounds of chemo, Paclixatel and Carboplatin. Her initial blood markers were at over 9000, which came down to just over 200. She was due a 6th but they stopped it as they wanted to wait 4 weeks so she could get her Op, it was a 7 week wait inbetween chemo sessions. Her initial scans looked promising and the surgeon was confident it would go well. Fast forward to yesterday where basically surgery was halted after being opened up (excuse the crass choice of wording) as they didn’t like what they saw. So we are waiting to hear from the surgeon on his rounds this morning to see how we progress, ultimately though it’s not sounding good.

dont really know if there’s a question in there, but I’m at a total loss as where to look, what to do, we’re utterly heartbroken as the hysterectomy and removing all the nastys was her best chance at beating this god awful disease.

  • Oh my lovely, 

    I am so sorry to hear both how you've been treated and how little support you have seemed to receive. 

    There isn't a really a question to ask and I think maybe you are reaching out for some reassurance? 

    My Husband too has felt all the frustration and anger I feel like you are explaining here, thank goodness your partner was strong enough to advocate for herself and keep push for a diagnosis and hopefully the surgeon will be able to explain clearly why things didn't proceed and give you a clear plan of action. 

    Ovarian Cancer is a total &?$@ and anyone reading your message will understand 100% your fear and frustration. 

    Just know you are not alone the community and Macmillian will support you both as best they can. 

    Sending loads of love and hope your way. 

    The best you can do right now is be there, and you are doing that. 

    T x