Hi
I ve just been diagnosed with a borderline ovarian mucinous tumour. Now I realise it isn't cancerous and it's been staged at 1a but after months of being told it was a benign cyst it came as a bit of a surprise. Had an op by a general gynae a month ago and they removed my left ovary and tube along with the large cyst. Got called back to the hospital yesterday which was a bit scary as I thought everything was fine. So I see another consultant who says I can do one of 3 things - nothing and be monitored over the next few years or have my appendix removed and further biopsies to see if anything has spread or have a hysterectomy. I'm 44 so don't know if I want to go through the menopause yet but on the other hand I don't fancy getting another tumour - though it's very unlikely apparently . Really I just wish they had said this is what we're going to do now. I have a few weeks to make a decision and change my mind a few more times! Any advice or thoughts would be much appreciated.
Hi Suebee, I was diagnosed with a borderline cyst 2010, the doc was adamant that it wasn't cancer, and that I shouldnt think that it was or worry, and they would monitor me.
In the meantime, I got pregnant, had a baby and forgot all about it. Unfortunately, I did get another cyst which they monitored, I told them I was not bothered about any more children and they eventually removed it and this time it was cancer.
My advice would be, listen to your doc, there are different grades, stages, types of OC. Be healthy, I believe exercise and diet can keep cancer at bay and I wish I had thought a bit more, oh I could get cancer, eat brocolli ;-) I also wish I had pushed for the 2nd cyst to be removed as soon as I had it, as I was diagnosed stage 1c ( the cyst burst) and I had to have 6 rounds of chemo. I wish they'd just taken it out instead of monitoring for maybe a further 6 months.
I was 39 when I had the hysterectomy and I am in menopause, yes it's a pain, I get flushes, everythings a bit dry (!!) but I am 41 now and it's not the end of the world. Leaving my baby daughter without a mum would be the end of the world. The outlook for early stage OC is really good. Maybe have your appendix out, further biopsies, and check it hasn't spread, you have been caught early and the fact that you are being monitored should hopefully mean the docs have it under control.
Thanks for your reply it's really helpful to hear other people's experiences. I was interested to hear about your second cyst as it already seems I have a another cyst on my remaining ovary which they have said at the time of my mri was thought likely to be a dermoid cyst. So I am going to talk to the consultant about this. Am glad to hear you re on the road to recovery and continue to enjoy your daughter!
Thanks once again
Sue x
i was diagnosed today with a mucinous borderline ovarian tumour stage 1, I had my ovary and tube remove 4 weeks ago it was 17x13cm in size. I have been advised no further treatment just scans and bloods every 6 months.
i wondered what your outcome was I the end, did you have further treatment or were you monitored?
I am 51 and had a full hysterectomy 3 weeks ago. Whilst under, they take a frozen section of the tumours ( I had two - each around 8cm - 12cm each). My CA125 was 12000!!!
The result came back as 'borderline' and I am going for my final results tomorrow so am hoping the borderline diagnosis hasn't changed.
If a stage 1a (and a 1-2) I will escape chemo but 3 and above I will need chemo so fingers crossed for borderline.
The hospital said if left, the tumours would have turned cancerous so possibly found and removed just in time.
No signs of menopausal symptoms 3 weeks in?
My advice ( I know it helps as I've had my children) is don't take any chances - get it all out and reduce your chances of it coming back.
I was just as petrified of the operation as having a cancer diagnosis. However, I had no recollection of even being knocked out and woke up and it was all done. The pain relief was excellent and went home from hospital on day 4.
Yes take the advice of the doctors and professionals - but don't play russian roulette if there is a chance your prognosis can change.
Good Luck and wishing you all good health in the future.
I hope everything went well with your result. I would like to ask you what was your treatement as I am now in the same situations with an ovarian borderline tumor but they gound a small amount of liquid with same atypia in. Still I didn't received chemo or other kind of treatement only follow up is need for it
