Why can't I get any medical professional to give me a prognosis ?
I want to know my life expectancy, even if its an estimate.
My primary cancer is Mucinous Adenocarcinoma of the ovary. This tumour was 20cm x 15cm x 11cm appeared in June 2024 and was removed along with my caecum, appendix, uterus, fallopian tubes and ovaries, peritoneum and omentum. I also had a Lower Anterior Resection of my Rectum as the tumour had attached itself to the outside of my rectum. The tumour had to be bisected to remove it.My op.was 15/10. Complete CRS and HIPEC was achieved.
I was expecting a favourable long term outcome even though my consultant recommended I have 6 rounds of Carboplatin and Pacitaxol, just as a 'Belt & Braces' strategy.
Then I had to have a CT scan to provide a baseline for the chemo and grey areas were seen on my liver! I was devastated, MRI two days later confirmed I had 3 small ( 1.1cm and 2 x 4mm ) mets my liver.
I was already stage 3C as I had a few mets in my omentum. But now I must be stage 4C? as it's classed as distant spread.
From what I've read this puts me as pretty much incurable, maybe terminal.
I understand that liver resection and ablation techniques may be effective. I know that MOC is hard to treat and Carboplatin/Pacitaxol is not that effective.
The MDT has recommended that I have the chemo and after 3 cycles I'll have another CT to see if the chemotherapy has been effective or if the mets have spread or got bigger. I have been referred to the Hepato/billary oncology team for their opinion I am assuming that's another MDT? But I've also been told that I won't be considered for surgery, or any treatment like ablation unless any disease is stabilised. But I'm also told the a PET scan at this stage is not likely either ( to see if I have metastases elsewhere- which I thought would be important. ) so it feels as I am not getting what's needed to make a difference, and extend my life.
So, I want to know what my life expectancy now is.
No one seems to want to commit or say, but as I've read stage 4C with liver mets is a very poor prognosis.
The thing is I want to know now.
I am seeing my Gynae oncologist on Monday.How do I get her to give me a realistic estimate? She's been very cagey at the first appt when she told me my OS was 30% at 5 years before the mets were found. I've read that's now 18% at 5 years.
i just want honesty.
