Any personal experience welcome

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Hello all, 

So am hoping someone can help me run though a rough timeline please.

I have had my 2ww referral appointment today with the gynaecologist and honestly came away feeling stupid and like I was wasting her time.

After waiting an hour past my appointment to be seen I was in there 20 mins max.

She asked a few question, felt my tummy, looked at my cervix and inserted her fingers while feeling my tummy during the time. She said I would be given a MRI scan and I need to redo my ca125 blood test as the test was done too close to the end of my last period (3 days) and could be inaccurate, I asked when I would get tests and some results she said 2-4 weeks is this a normal length of time? But am not actually sure if this was 2-4 weeks for just the MRI or for everything.

She never gave me any contact numbers so I could follow up do I just do this though my doctor? Am ever so confused have I just dramatised all this in my head cos that's how she made me feel.

Thank you for all your help.

  • Hi  

    I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be easier for the other group members to see it.

    From my experience with breast cancer, all your appointments will be arranged by the hospital so you shouldn't have to go back to your GP to arrange this. However, to be on the safe side, I'd ring the hospital that you were referred to and ask the switchboard to put you through to the consultant that you saw's secretary. She can then look you up on the system and tell you what is being planned and when you should get the appointments through.

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  • Hi there, sounds like I'm in the similar stage of journey too. I'm not sure if I have any advise but feel like I may be sharing someone of your emotions. 

    As reflected in my bio, after seeing my gp things all went fast and felt quite serious and naturally worrying (esp given my famiky history), i was off work on leave at the time, i had taken the leave as felt exhausted,  i originally went to GP thinking it was start of menopause,  thought whilst i was off id see if i could see GP.  Monday i went back to work, to sort things out incase things continued to move at pace like it felt whikst on leave. Had the discussions about my referral and health experiences with my supportive manager (im an nhs nurse consultant ), i was wiped out by 11am and made decision to take some time off again this time sick leave, think its a mix of symptoms that feel like getting worse and mental exhaustion, but feels like if i exert any energy for more than 30 mins im done.

    Yesterday I saw the Gynaecologist for the 2 ww, felt very similar to your experience although they spent a bit longer with me. Came away feeling like I didn't know if I'm over thinking, and should just be back of work and getting on with it. I was told I may need more imaging and they will discuss at there MDT (apparently happen Tuesdays and Wednesdays) don't know if will be discussed this wk or next, or when/how will hear, will I have more scans before the MDT or after, I felt like it was all kind of ifs and buts, so got back to worrying I'd over worried about things again and should he at work, but my jobs not something I can just drop if I get a call to go to a scan or something which was what was happening whilst I was on leave.  Feel in limbo

    Sorry for ramble, but I feel a little lost for what to do which I sense you are too.

    Any updates for you? As I think your a little ahead of me in the journey.  

  • Hello Al80,

    Thank you for your reply, its really nice to know that am not the only person that thinks these things.

    I am very sorry that you have to go though all of this it seems so unfair.

    I know what you mean about everything happening so quick, I feel like when I start to draw breath again a phone call or appointment knocks it right back out again, it's been 3 weeks since this all took over my thoughts but feels like a life time.

    I had my gyno appointment on the Friday when she told me she would be sending me for a MRI and I  didn't think I'd hear anything for a week or 2 but they called me Monday and offered me an appointment for that day, unfortunately I live in the Lake District and my car was snowed in and under a foot of snow, I thought I blew my quick chance of getting some answers but they called me again on Tuesday and gave me an appointment for tomorrow (Thursday) which has put me into a bit of an emotional spin.

    I am very lucky at my job my manager is as understand as he can be but am very matter of fact with the information as I don't really want anyone to see me break especially if I am being over dramatic and its not something I like talking about to my male boss, but he is ok with me having to adjust my shifts as I need while dealing with this, which I appreciate so much because I think working and having to focus on something else is helping me deal with things better.

    Noone has said anything to me about MDT or what to expect from that, which until I'm told otherwise am taking as a win.

    I wish you all the best for your MDT meeting and I truly hope its good news for you x