CA125 of 696 with very bloated stomach

Hello Cuqui

Welcome to the Online Community.

I am sorry that you have had a bloated stomach but it is good that you have been to the doctor to get it checked. I can understand how worrying it is to be referred for scans and further tests. I had womb cancer and had a similar experience with the testing. I was first sent for an ultrasound and they do one on your tummy (like when you are pregnant) and then an internal one. A bit uncomfortable but very much bearable. The CT will also help them find out what is going on inside. When there are symptoms that could in some people mean a diagnosis of cancer they do normally see you with the urgent 2 weeks pathway. 

CA125 is a blood marker and there are different reasons that it can be raised. Mine was done at every blood test through my diagnosis and treatment. I was told myself that they were looking for fluctuations in the amounts which might indicate something was going on. However although cancer can cause it to be raised, there are other potential reasons. 

I understand that it is very scary but these are symptoms that do need checking out and it is better to get them checked sooner rather than later. I would try not to google too much for information as a lot out there is not particularly accurate. It is very natural to want to know more but hopefully the ultrasound scans will give a much better idea of the possibilities. 

To give you an idea, I had my ultrasound (for bleeding) at 5 pm on a Monday and by 10am the following day they phoned me to ask me to come in for further testing. So hopefully you will not have to wait too long for the ultrasound and some results.

In the meantime if talking things through would help then please do give the Support Line a call. They are lovely on there and very used to people who are undergoing tests that may or may not lead to a cancer diagnosis. 

I wish you the best of luck and we are here if you need us.

Jane

Hi, I had a very bloated stomach, was constantly on the loo, belching and passing wind. I asked my gp at the beginning of Sept, and within the week had bloodtests, with a slightly raised CA125, a CT scan and an ultra sound. These revealed a huge cyst, I then saw a gynaecologist who showed me the cyst in ct scan- I looked pregnant, and at 65 that was not a good look! The gynaecologist advised they would have a meeting and discuss treatment and I would get a phone call the following week. The following week I had an appointment with the surgeon, he advised they could not be sure if it was cancer until it was removed. I then had pre op tests etc done and went it for op on 23rd October.the operation was a success and I was home after 5 days. 3 weeks after op I received results, it was a mucinous ovarian cancer, stage 1c, op had removed ovary, omentum and lymph nodes and it had not spread. This week I saw the oncologist, she has requested further info from the pathologist about the way the cancer had been growing, as this will determine my need or not for chemo, but either way I will receive regular check ups over the coming years. It is scarey, but I feel amazing since my operation, I lost 10kg from the day before op until 7 days after- they said cyst weighed about 6kg before op but it must have been more! I am taking each day as it comes, but stage 1 is good, it hadn't spread is good, I may not  need chemo, which is good but if I do that is just to make sure. The staff have been excellent, keep your chin up, ask questions, and take one day at a time. Line up your ducks, and just concentrate on one appointment at a time so you can shoot it! Good luck! Best wishes Windbag x